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RESEARCH METHDOLOGY
Year : 2011  |  Volume : 2  |  Issue : 4  |  Page : 137-144

Patient-reported outcomes: A new era in clinical research

Prasanna R Deshpande, Surulivel Rajan, B Lakshmi Sudeepthi, CP Abdul Nazir
Department of Pharmacy Practice, Manipal College of Pharmaceutical Sciences, Manipal, India

Date of Web Publication31-Oct-2011

Correspondence Address:
Prasanna R Deshpande
Department of Pharmacy Practice, Manipal College of Pharmaceutical Sciences, Manipal University, Manipal - 576 104
India
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Source of Support: None, Conflict of Interest: None


DOI: 10.4103/2229-3485.86879

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   Abstract 

Now-a-days there is significant discussion about patient-reported outcomes (PRO) in medical world. The following article covers almost all the areas of PRO including-their importance, important concepts for understanding of PRO, significance, ideal properties, types, development and evaluation of PRO instruments. It is useful for physicians, pharmacists and patients for the assessment and improvement of the therapy.

Keywords: Patient reported outcomes, clinical research, PRO, quality of life


How to cite this article:
Deshpande PR, Rajan S, Sudeepthi B L, Abdul Nazir C P. Patient-reported outcomes: A new era in clinical research. Perspect Clin Res 2011;2:137-44

How to cite this URL:
Deshpande PR, Rajan S, Sudeepthi B L, Abdul Nazir C P. Patient-reported outcomes: A new era in clinical research. Perspect Clin Res [serial online] 2011 [cited 2023 Feb 1];2:137-44. Available from: http://www.picronline.org/text.asp?2011/2/4/137/86879


   Introduction Top


'Patient' can be considered as the centre for any healthcare system. Now-a-days there is growing realization for the patient-centered healthcare system. [1] The outcomes of a clinical intervention obtained by the patient i.e. patient-reported outcomes (PROs) are seemed to be of more importance in future than any other outcomes like clinical, physiological or caregiver-reported. As per studies, enhanced treatment adherence and outcomes can be obtained by giving attention to patient feedback on healthcare outcomes and patient behavior change. [2]

As per US-FDA, a PRO is any report of the status of a patient's health condition that comes directly from the patient, without interpretation of the patient's response by a clinician or anyone else. [3]


   Importance of PRO Top


Though medical technology allows to measure physical, physiological or biochemical data of the patient; it is not able to give all the data about the treatment or the disease. Some data can be obtained only from the patient. Such data includes the things as mentioned in [Table 1]. [4]
Table 1: Data can only be obtained from the patient

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In short, patient can tell many things like thoughts, complaints, opinions that technology or any observer can't and which is actually more valuable. As discussed earlier PRO are the measurements come directly from the patient. Further to add, in some diseases survival is not the ultimate goal of the treatment but quality of life also plays an essential role in the treatment. E.g. Cancer chemotherapy. [5] Therefore, PROs are gaining the importance in clinical world.


   PRO and Other Types of Outcomes Top


The outcomes are broadly classified into- clinical (e.g. cure, survival), humanistic (e.g. role performance, emotional status) and economical (e.g. expenses, saving). [6] In clinical scenario the outcomes can be clinician reported (e.g. performance of the patient), caregiver reported (e.g. functional status), physiologic (e.g. tumor size by using MRI) or patient reported (e.g. symptoms). If the patient is observed for the outcomes by clinician, researcher or caregiver then the outcomes become observer reported outcomes (OROs). [4] If the patient is revealing in the written questionnaire that he/she is experiencing morning stiffness is PRO but if the clinician is asking to describe about the morning stiffness i.e. severity and nature is considered to be ORO.

Proxy reported outcome is a measurement based on the reportby someone other than the patient reporting as if he or she is the patient. It is different from a PRO or ORO. [3]


   Difference Between Symptoms and Health Related Quality of Life Top


Although symptoms of the patient and health related quality of life (HRQOL) hear to be similar, they are the two different concepts. Symptom is a one-dimensional property while HRQOL is multidimensional. Symptoms are often main objective of treatment, mirror clinician-patient discourse and vary dynamically with time but in case of HRQOL all the above things are rarely. Symptoms are directly related to disease and treatment effect while there is indirect relation of them with HRQOL. In case of PRO concepts symptoms are often considered for behavioral objective measure but seldom for HRQOL. Complexity of the concepts is complex in HRQOL and simple in case of symptoms. [7]


   Important Concepts Top


Prior to know about PRO one should be familiar with the following concepts:

PRO instrument

A PRO instrument (i.e., a questionnaireplus the information and documentation that support its use) is a means to capture PRO data used to measure treatment benefitor risk in medical product clinical trials. [3]

PRO concept

It is nothing but the thing or event being measured. It can be called as the specific goal of the instrument. [3]

e.g. symptom or group of symptoms

PRO domain

A subconcept represented by a score of an instrument that measures a larger concept comprised of multiple domains. [3]

e.g. depression

PRO item

An individual question, statement, or task (and its standardized response options) that is evaluated by the patient to address a particular concept. [3]

e.g. Are you feeling depressed?

Conceptual framework

The conceptual framework explicitly defines the concepts measured by the instrument in a diagram that presents a description of the relationships between items, domain (sub-concepts) and concepts measured and the scores produced by a PRO instrument [Figure 1]. [3]
Figure 1: Conceptual framework in PRO instrument

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Endpoint

The measurement that will be statistically compared among treatment groups to assess the effect of treatment and that corresponds with the clinical trial's objectives, design, and data analysis. [3]

End point model

A diagram of the hierarchy of relationships among all endpoints, both PRO and non-PRO, that corresponds to the clinical trial's objectives, design, and data analysis plan [Figure 2]. [3]
Figure 2: End-point model

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Conceptual equivalence

It is the equivalence in relevance and meaning of the concepts being measured in different languages and /or cultures. [8]

Health Related Quality of Life

In simple words HRQOL can be defined as personal health status of the individual. [9] Actually, it is a multi-domain concept which represents the patient's general perception of the effect of illness and treatment on various aspects of life such as physical, psychological, and social. [3] Some other aspects also can be predicted to affect HRQOL like- economical, disease symptoms, adverse drug reactions, patient-education, disease-treatment given to the patient [Figure 3].
Figure 3: Factors affecting health related quality of life

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   Ideal Properties of PRO Instrument Top


As per the literature, [3],[9] following ideal properties can be extracted-

  • It should be specific to the concept being measured.
  • It should be based on end-point model.
  • It should have conceptual equivalence.
  • It should be based on the conceptual framework.
  • It should contain optimum number of items.
  • It should have easy and specific measurement properties i.e. use of the scales which is easiest for the intended population to understand.
  • It should have proper evidences for the conceptual framework.
  • It should maintain the confidentiality of the patient.
  • It should be reproducible.



   Significance of PRO Instruments Top


By using PRO, various types of outcomes can be measured such as physical functions, symptoms, global judgments of health, psychological well-being, social well-being, cognitive functioning, role activities, personal constructs, satisfaction with care, [10] health related quality of life (HRQOL), [11] adherence to medical regimens [12] and clinical trial outcomes. [10]

PROs may be helpful in determination of the eligibility of the patient for certain clinical trials. E.g. Inclusion criterion for the trial is female patients with hot flashes. PROs can be used for confirmation of the measures. E.g. patients with morning stiffness are most likely to be suffered from rheumatoid disease. PROs can help to interpret other measures and also help to eliminate other possibilities. E.g. If the patient has breathlessness and the patient is a smoker then COPD can be expected rather than anemia. PROs are useful in determination of patient compliance or reasons for non-compliance. E.g. Are the side effects so severe? PROs may be used as study endpoint. E.g. Efficacy of analgesic drug by determining pain levels. [4]

In diseases like cancer it is important to determine the quality of life of the patient as patients with progression of cancer frequently experience multiple symptoms, economical burden, home management problems and lack of emotional well-being, all of which can adversely affect quality of life. [13] PROs are helpful in the determination of quality of life in cancer patients. Role of QOL/PROs in cancer care can be considered in the following conditions like [14]

  • Determination of negative effects of the adjuvant therapy
  • Identification of the needs for the supportive care
  • Comparison of two standard therapies having similar survival outcomes
  • Identification of negative effects of the therapy when survival time is long
  • To find out whether a new therapy is preferable to standard therapy
  • To determine whether a therapeutic regimen is better than supportive care only, when survival time is short
  • Targeting problems and making the communication easier in clinical practice


As PRO instruments are based upon the scores obtained by the patient without any interpretation; it gives a clear picture about the patient condition. PROs are useful for the patients, patient-family members and loved ones, healthcare providers, payers, regulatory authorities, technological assessors and researchers. PROs are beneficial for the patients as he/she asks for and experience the treatment. It is useful for patient family members and loved ones as they desire the best for the patient and themselves. The PRO data is also useful for healthcare providers and payers as they make a decision with patients on prescribing of treatments/therapy and pay for the treatment respectively. Information obtained from PRO can also be used by regulatory authorities (e.g. FDA) and technology assessors [e.g. National institute for health and clinical excellence (NICE)]. PRO studies make the consequences of the studies accessible through various publications like formulary submission dossiers, direct to consumer advertisements, journals and continuing medical educations (CME). [9],[15],[16]

Conclusively, PROs are unique indicators of impact of disease on the patient, helpful in empowerment of the patients, necessary for determination of efficacy of the treatment, by communication helpful in creating a rapport between patient and healthcare providers, useful in the interpretation of clinical outcomes and treatment decision making. [9]


   Types of PRO Instruments Top


Broadly, PRO instruments can be classified as per the measurement of the interested concept as [10],[17]

  • Generic (anticipated to detain a very wide variety of aspects of health status and the outcomes of illness and hence to be applicable to a wide range of patient groups) e.g. Psychological General Well-Being Index (PGWBI)
  • Disease specific e.g. Rheumatoid Arthritis Quality of Life questionnaire (RAQoL)
  • Dimension specific e.g. Physical Activity Index (PAI)
  • Region/site specific e.g. Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR)
  • Individualized (instruments in which the respondent is allowed to select issues, concerns or domains of personal concern that are not predetermined by the investigator's list of questionnaire items) e.g. Schedule for the Evaluation of Individual Quality of Life (SEIQoL)
  • Utility measures (considered as generic type but with one particular form of numerical evaluation of healthiness) e.g. Utility measure for major, unipolar depression (McSad)
  • Summary items e.g. questions (regarding limiting enduring illness) in General Household Survey

    All types of PROs have their own advantages and disadvantages.



   Development of PRO Instrument Top


As per US-FDA, [3] [Figure 4] there are five steps for the development of a PRO instrument. First, there will be theorization of a conceptual network. It may include outlining of potential claims and hypothesized concepts, determination of intended population and application i.e. scores, mode and frequency of administration, performance of expert/literature review, development of the framework, assignment of PROs in preliminary endpoint model and documentation of the preliminary instrument.
Figure 4: Development of PRO instrument

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The second step may include finding of the patient inputs, making of new items, assortment of recall period, response options and format, selection of mode of administration and data collection, conduction of patient cognitive discussion, pilot testing of the outlined instrument and documentation of content validity.

Third step may include the following-confirmation, assessment and finalization of the instrument, documentation of measurement progress. In assessment of the score reliability, construct validity and ability to detect change will be done.

Fourth step may contain- preparation of protocol and SAP (statistical analysis plan), compilation and analysis of data, assessment of treatment response (by means of responder definition and cumulative distribution), documentation of interpretation of treatment advantage (in relation to claim).

Fifth and last step in the development of the instrument is modification of the instrument which include- altering of phrasing of items, population response options and mode of administration, translation and culturally adaptation of the instrument, evaluation and documentation of the changes.


   Administration of PRO Instrument and Data Collection Top


Data collection by using a PRO instrument can be done in three ways [3] as by interview, self administration or combination of both. Live interviews may happen in person or by means of communication medium. Every method has its own positive and negative aspects. [4]


   Response Scales Top


It is a set of answer choices that fall into an order e.g. from highest to lowest. A scale may be composed of pictures, numbers or categories. [4] Following types of response scales or options may be used in a PRO instrument. [3] The response scales are mentioned with example in the [Table 2].
Table 2: Types of response scales

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Recording of events is also one of the methods to determine the response that can be included by the patient. E.g. dairy maintained by the patient for the episodes of urination in night.


   Evaluation of PRO Top


For the evaluation of a PRO instrument following things may be checked [3]

  • Validity

    Content validity

    Construct validity

    Criterion validity
  • Reliability

    Test-retest or intra-interviewer reliability

    Internal consistency

    Inter-interviewer variability
  • Ability to detect change


Validity

It is the degree to which evidence and theory support the interpretations of test scores entailed by the proposed uses of tests. [18] Validity is not the property of the instrument i.e. PRO instrument but of instrument scores and their interpretations. [18],[19] Therefore, validity must be established for all proposed interpretation.

Content validity

It is the extent to which the instrument measures the concept of interest. [3] Content validity of the instrument can be performed qualitatively as well as quantitatively. [20] According to US-FDA(1), following attributes can be checked- item generation, data collection method and instrument administration mode, recall period, response options, instrument format instruction and training, patient cognition, scoring items and domains, respondent and administrator burden. The instrument should have proper evidence in the literature linking between concept being measured by the instrument and targeted claims. [3],[20] Quantitative analysis of the items is also desirable and helpful. [20] E.g. evaluation of how well items deal with complete continuum of patient experiences. Item response theory (IRT) and Rasch analysis can be used to evaluate item information curves and what fraction of the response continuum items address. [21],[22]

IRT is a powerful tool for the evaluation of the questionnaire (PRO instrument) both at item and scale levels and tailors use of the same to the patients. [23] Some important methodological considerations for IRT modeling are [24]

  • Should IRT methods be used by the researcher for the questionnaire?
  • Which IRT model should be used?
  • What sample size is needed for IRT analysis?


Rasch model is the only IRT model in which a person is characterized totally by the total score across the questions/items. Further to add, it is the simplest of such models having least number of the parameters for the person and only one constraint for each category of an item. It may be used to verify the degree to which scoring and summing is justifiable in the collected data and how well the information fit in the model. [25]

Construct validity

It is defined as evidence that relationships among concepts, domains and items conform to a priori hypotheses concerning logical relationships that should exist with other measures or characteristics of patients and patient groups. [3] It includes convergent, divergent and known groups' validity. In construct validity, measures of constructs theoretically should be related to each other and should in fact observe to be related to each other. In the similar way, in discriminant validity, one should be able to discriminate between dissimilar constructs. [26] In known groups' validity, evidence for the thing that the instrument can differentiate between clinically distinct groups is checked. [3]

Criterion validity

It is nothing but the extent to which the scores of a PRO instrument are related to a known gold standard measure of the same concept. [3]

Here, the performance of the operationalization is checked against some criterion. In content validity, the criteria are the construct definition itself i.e. it is the direct judgment while in criterion validity, often there is a prediction about how the operationalization will perform based on the theory of construct. It may be of two types as "predictive" and "concurrent". In the former one there is assessment of the ability to predict something in the real world which is present theoretically. For instance, if there is measurement of slowness of movement in Parkinson's disease, we could give our measure to the respective patients and see if there is a high correlation between the scores and the degree of slowness. The presence of high correlation makes available an evidence for "predictive validity". In concurrent validity, there is assessment of the ability of the item to distinguish between the groups in real world as mentioned theoretically. E.g. in the assessment of breathlessness, the item should be able to distinguish between asthma and COPD. [26]

Practically, it is difficult to determine the criterion validity as there is no gold standard for most PROs. [3]

Reliability

It is the ability of a PRO instrument to yield reproducible and consistent estimates of true treatment effect. [3] It is a necessary (but not adequate) component of validity. [27],[28] To establish the reliability of the scores before using the PRO-instrument in practice, it is necessary that there should be sufficient accrual of evidence. [29] It can be predicted by three ways as 1) test-retest reliability- it is a measure of the ability of a psychologic testing instrument to yield the same result for a single Patient at 2 different test periods, which are closely spaced so that any variation detected reflects reliability of the instrument rather than changes in the Patient's status. [30] It may be considered as intra-interviewer reliability for interviewer administered PROs. This type of reliability is checked by intra-class correlation coefficient (ICC). [3] As per the generic definition ICC is the ratio of true variance i.e. the variability between the targets and observed variance i.e. the total variance-true variance plus other variance.Time period between test and retest is an important factor here. 2) Internal consistency-The consistency of the results delivered in a test, ensuring that the various items measuring the different constructs deliver consistent scores. [31] Internal consistency is determined with Cronbach's alpha. Cronbach's alpha is coefficient of reliability. [32] It is defined as [33]



Where, K = the number of items

= the variance of the observed total test scores

= the variance of component i for the current sample of persons

The α value theoretically ranges from 0 to 1. The value of ≥0.7 is considered to be optimum. Item-total correlation is yet another test that may be considered for internal consistency. It is the measure of the association between an item and the total score from the set of the items within the scale. [34] It can be measured by using Pearson correlation coefficient. If the value of the Pearson correlation coefficient is high then stronger is the relationship between the items. 3) Inter-interviewer reliability - It determines the changes in the results when the instrument is administered by two or more interviewers. It is generally measured by Pearson's 'r' value.

Ability to detect the change

It is considered to be an important part in the evaluation of PRO instrument. The instrument should be able to detect the changes in the expected outcomes. For instance if there is an instrument which is determining the quality of life of breast cancer patient, then it should be able to predict the quality of life after the treatment. The quality of life score should be able to predict the improvement/stability in condition/worsening. Ability of the instrument to detect the changes may be affected by the various factors as per the type and concept to be determined. [3]


   Electronic PRO Top


Here the outcomes of the patients are collected by using electronic methods like electronic diaries, computers, telephones etc. The use of Electronic PRO (e-PRO) are found to be beneficial than paper based PRO. [35] e-PROs avoid data entry errors, give immediate access to data, enable to trigger alerts/notifications, reduce the missing information as compared to paper-based PRO, increase patient's willingness to report sensitive information. Further to add, data obtained from e-PRO gives real-time tracking of survey compliance. Some important barriers in use of e-PRO are- increased expense, limited time for patient-training and infrastructure study site. There may be some cultural resistance for the administration of electronic instrument. [36]

The use of e-PRO was found to successful in various recent clinical trials. [37],[38]


   Summary Top


  • Important concepts to be known - PRO, Concept, Domain, Item, End-point model, Conceptual framework, Conceptual equivalence, HRQOL
  • Ideal properties of PRO instrument - Concept specific, End-point model, Based on conceptual framework, Optimum number of items, Reproducibility, Easy accessibility of scales by patients, Availability of proper evidence, Conceptual equivalence, Maintenance of confidentiality.
  • Types of PRO instruments - Generic, Disease specific, Dimension specific, Region specific, individualized, Utility measures, Survey items
  • Development of PRO instrument- (Steps)
    • Theorization of a conceptual framework;
    • Adjustment of the conceptual framework and outlining instrument;
    • Authentication of the framework and evaluation of further measurement properties;
    • Assemble, examine and interpret data;
    • Adapt the PRO instrument
  • Types of response scales - Likert scale, visual analog scale (VAS), Anchored VAS, Pictorial scale, Rating scale, Checklist
  • Evaluation of PRO instrument-
    • Validity - Content, Construct, Criterion;
    • Reliability - Test-retest reliability, internal consistency, inter-interviewer reliability
    • Ability to detect change


 
   References Top

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    Figures

  [Figure 1], [Figure 2], [Figure 3], [Figure 4]
 
 
    Tables

  [Table 1], [Table 2]


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[Pubmed] | [DOI]
2 Endpoints for clinical trials in ophthalmology
Leopold Schmetterer, Hendrik Scholl, Gerhard Garhöfer, Lucas Janeschitz-Kriegl, Federico Corvi, SriniVas R. Sadda, Felipe A. Medeiros
Progress in Retinal and Eye Research. 2023; : 101160
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3 Patient-Reported Outcome Measures in Key Sub-Saharan African Languages to Promote Diversity: A Scoping Review
Chanel van Zyl, Lidwine B. Mokkink, Wayne Derman, Susan Hanekom, Martin Heine
Value in Health Regional Issues. 2023; 34: 86
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4 Patient-Centered Outcomes With a Multidisciplinary CKD Care Team Approach: An Observational Study
Surekha Annadanam, Gunjan Garg, Angela Fagerlin, Corey Powell, Emily Chen, Jonathan Segal, Akinlolu Ojo, Julie Wright Nunes
Kidney Medicine. 2023; : 100602
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5 Classification of Parkinson’s disease and its stages using machine learning
John Michael Templeton, Christian Poellabauer, Sandra Schneider
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6 Assessing shoulder disability in orthopaedic specialist care: Introducing the Copenhagen Shoulder Abduction Rating (C-SAR)
Mikkel Bek Clausen, Adam Witten, Karl Bang Christensen, Mette Kreutzfeldt Zebis, Morten Foverskov, Ann Cools, Per Hölmich, Kristian Thorborg
Musculoskeletal Science and Practice. 2022; : 102593
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7 Use of Patient-Reported Outcomes: Rationale and Clinical Implementation
Jennifer Woody, Joshua Tennant
The Journal for Nurse Practitioners. 2022;
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8 Content Validity of the Disability of the Arm, Shoulder, and Hand Questionnaire in a College-Age Patient Population
Shannon L. David, James L. Farnsworth, Melissa Theige
JSES International. 2022;
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9 Pilot Cross-Sectional Quality of Life Study of a Diverse Endocrine Surgery Patient Population
Jana Lu, Hui Zheng, Victoria Lai
Journal of Surgical Research. 2022; 278: 257
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10 Umbilical cord clamping time and maternal satisfaction
Blas Javier Orenga-Orenga, Pasqual Gregori-Roig, Antonio Real-Fernández, Francisco Donat-Colomer, Paula Sánchez-Thevenet
Midwifery. 2022; 115: 103487
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11 Integrating Oral Health in Speech-Language Pathology Practice: A Viewpoint
Rebecca H. Affoo, Shauna Hachey
Perspectives of the ASHA Special Interest Groups. 2022; : 1
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12 Preliminary construct validity of a memory concerns scale derived from a PROMIS® item bank in a spanish-speaking sample
Anthony H. Lequerica, Mallory Houston, Michelle H. Chen, Juan Carlos Arango-Lasprilla
Neuropsychological Rehabilitation. 2022; : 1
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13 Evaluating Symptomatic and Psychosocial Well-being After Keloid Treatment With SCAR-Q
Minji Kim, Nicholas Mirsky, Amanda Spielman, Prakash Mathew, Raphael Yechieli, Jennifer C Tang, Seth R Thaller
Aesthetic Surgery Journal. 2022;
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14 Patient-Reported Outcomes After Reduction Mammoplasty Using Breast-Q: A Systematic Review and Meta-Analysis
Alice T Wang, Adriana C Panayi, Sebastian Fischer, Yannick F Diehm, Christian Tapking, Gabriel Hundeshagen, Ulrich Kneser, Melissa Mastroianni, Bohdan Pomahac, Valentin Haug
Aesthetic Surgery Journal. 2022;
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15 Construct Validity of Pediatric PROMIS Computerized Adaptive Testing Measures in Children With Adolescent Idiopathic Scoliosis
Stuart L. Mitchell, Kevin H. McLaughlin, Keith R. Bachmann, Paul D. Sponseller, Lisa M. Reider
Journal of Pediatric Orthopaedics. 2022; Publish Ah
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16 Advocating for in-center hemodialysis patients via anonymous survey
Arun Rajasekaran, Anand Prakash, Spencer Hatch, Yan Lu, Gary R. Cutter, Abolfazl Zarjou
Medicine. 2022; 101(41): e30937
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17 Quality of life in sinonasal tumors: an up-to-date review
Vanessa Jane Chow, Nikolaos Tsetsos, Alexandros Poutoglidis, Christos Georgalas
Current Opinion in Otolaryngology & Head & Neck Surgery. 2022; 30(1): 46
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18 Smartphone-based follow-up of upper airway symptoms in head and neck cancer survivors one year after radiation therapy
Natalia Muñoz-Vigueras, Paula Obeso-Benítez, Vanesa Jerviz-Guía, Janet Rodríguez-Torres, María Granados-Santiago, Laura López-López, Marie C. Valenza
International Journal of Language & Communication Disorders. 2022;
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19 Patient-reported outcome instruments assessing the involvement of children and adolescents with type 1 diabetes in their treatment: a scoping review protocol
Rikke Bjerre Lassen, Caroline Bruun Abild, Kurt Kristensen, Lene Juel Kristensen, Annesofie Lunde Jensen
JBI Evidence Synthesis. 2022; Publish Ah
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20 Systemic therapies for preventing or treating aromatase inhibitor-induced musculoskeletal symptoms in early breast cancer
Kate E Roberts, India T Adsett, Kirsty Rickett, Sophie M Conroy, Mark D Chatfield, Natasha E Woodward
Cochrane Database of Systematic Reviews. 2022; 2022(1)
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21 Effect of a Community Health Worker Intervention on Acute Care Use, Advance Care Planning, and Patient-Reported Outcomes Among Adults With Advanced Stages of Cancer
Manali I. Patel, Kristopher Kapphahn, Marilyn Dewland, Veronica Aguilar, Blanca Sanchez, Etsegenet Sisay, Ariana Murillo, Kim Smith, David J. Park
JAMA Oncology. 2022;
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22 International Urogynecology Consultation: Patient Reported Outcome Measures (PROs) use in the evaluation of patients with pelvic organ prolapse
Sara Cichowski, Magdalena Emilia Grzybowska, Gabriela E. Halder, Sierra Jansen, Daniela Gold, Montserrat Espuña, Swati Jha, Ahmed Al-Badr, Abdelmageed Abdelrahman, Rebecca G. Rogers
International Urogynecology Journal. 2022;
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23 Utilising Electronic PROMs to Measure a Change in Health Following Elective Laparoscopic Cholecystectomy: A Feasibility Study
Prita Daliya, Dileep N. Lobo, Simon L. Parsons
World Journal of Surgery. 2022;
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24 Periacetabular osteotomy to treat hip dysplasia: a systematic review of harms and benefits
Lisa U. Tønning, Michael O’Brien, Adam Semciw, Christopher Stewart, Joanne L. Kemp, Inger Mechlenburg
Archives of Orthopaedic and Trauma Surgery. 2022;
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25 The bone conduction implant BONEBRIDGE increases quality of life and social life satisfaction
C. Irmer, S. Volkenstein, S. Dazert, A. Neumann
European Archives of Oto-Rhino-Laryngology. 2022;
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26 Fractures of the posterior malleolus: a systematic review and analysis of patient-reported outcome scale selection
Nicholas C. Danford, Justin E. Hellwinkel, Michael J. Nocek, Venkat Boddapati, Justin K. Greisberg, David P. Trofa
European Journal of Orthopaedic Surgery & Traumatology. 2022;
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27 Counselling, Research Gaps, and Ethical Considerations Surrounding Pregnancy in Solid Organ Transplant Recipients
Deirdre Sawinski, Steven J. Ralston, Lisa Coscia, Christina L. Klein, Eileen Y. Wang, Paige Porret, Kathleen O’Neill, Ana S. Iltis
Journal of Bioethical Inquiry. 2022;
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28 Narrative Review of the Role of Patient-Reported Outcomes and Inhaler Handling Errors in the Control of Asthma and COPD
Raúl De Simón Gutiérrez, Raúl Piedra Castro
Current Allergy and Asthma Reports. 2022;
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29 Patient-Reported Outcomes (PROs) in HIV Infection: Points to Consider and Challenges
Antonio Antela, José Ignacio Bernardino, Juan Carlos López-Bernaldo de Quirós, Pablo Bachiller, María José Fuster-RuizdeApodaca, Jordi Puig, Silvia Rodríguez, Isabel Castrejón, Beatriz Álvarez, Marta Hermenegildo
Infectious Diseases and Therapy. 2022;
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30 PROMIS Mobility CAT Maintains High Correlation and Low Test Burden Compared With Legacy Hip-Specific Instruments in Patients Undergoing Hip Arthroscopy for Femoroacetabular Impingement
Molly A. Day, Kyle J. Hancock, Ryan Selley, Reena Olsen, Vinicius Antao, Anil S. Ranawat, Danyal H. Nawabi, Bryan T. Kelly
Arthroscopy: The Journal of Arthroscopic & Related Surgery. 2022;
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31 Reporting of Patient-Reported Outcome Measures in Randomized Controlled Trials on Shoulder Rotator Cuff Injuries Is Suboptimal and Requires Standardization
Lydia Brock, Brooke Hightower, Ty Moore, Danya Nees, Benjamin Heigle, Samuel Shepard, Micah Kee, Ryan Ottwell, Micah Hartwell, Matt Vassar
Arthroscopy, Sports Medicine, and Rehabilitation. 2022;
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32 Agreement Between UDD App and Provider Evaluation of Esophagectomy Symptoms in a Mobile App Tool
Michael D. Traynor, Linda L. Chlan, Camryn Wzientek, Kathleen J. Yost, Karlyn E. Pierson, Minji K. Lee, Shanda H. Blackmon
The Annals of Thoracic Surgery. 2022;
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33 Associations between postpartum pain type, pain intensity and opioid use in patients with and without opioid use disorder
Grace Lim, Kelsea R. LaSorda, Elizabeth Krans, Bedda L. Rosario, Cynthia A. Wong, Steve Caritis
British Journal of Anaesthesia. 2022;
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34 A prospective, randomized trial of patient-reported outcome measures to drive management decisions in hematology and oncology
Rahma Warsame, Joselle Cook, Briant Fruth, Joleen Hubbard, Katrina Croghan, Katharine Price, Aminah Jatoi, Shaji Kumar, Carrie Thompson, Jan Buckner, Angela Dispenzieri, Jeff Sloan, Amylou C. Dueck
Contemporary Clinical Trials Communications. 2022; : 100964
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35 ATIENT REPORTED OUTCOMES IN THE DAILY PRACTICE IN CLINICAL ONCOLOGY: A SYSTEMATIC REVIEW
Andreas Timóteo Lutz, Aline Griza, Graziella Moraes Machado, Uilian Loose, Alessandra Dahmer, Juliana Silva Herbert
Critical Reviews in Oncology/Hematology. 2022; : 103658
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36 Role of Levothyroxine/Liothyronine Combinations in Treating Hypothyroidism
Jacqueline Jonklaas
Endocrinology and Metabolism Clinics of North America. 2022;
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37 Bringing Patient-Reported Outcome Measures (PROMs) Into Practice: A Review of the Latest Developments in PROM Use in the Evaluation and Treatment of Carpal Tunnel Syndrome
Azraa S. Chaudhury, David N. Bernstein, Carl M. Harper, Warren C. Hammert, Tamara D. Rozental
Journal of Hand Surgery Global Online. 2022;
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38 Health Utility of Drinkers’ Family Members: A Secondary Analysis of a US Population Data Set
Benjamin Thornburg, Jeremy W. Bray, Eve Wittenberg
MDM Policy & Practice. 2022; 7(2): 2381468322
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39 Dialectical behavioral therapy-based group treatment versus treatment as usual for adults with attention-deficit hyperactivity disorder: a multicenter randomized controlled trial
Anne Halmøy, Anna Edith Ring, Rolf Gjestad, Merete Møller, Bente Ubostad, Tage Lien, Ellen Kathrine Munkhaugen, Mats Fredriksen
BMC Psychiatry. 2022; 22(1)
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40 “Psychometric properties of the Norwegian foot function index revised short form”
Marianne Mørk, Aasne Fenne Hoksrud, Helene Lundgaard Soberg, Manuela Zucknick, Marte Heide, Karen Synne Groven, Cecilie Røe
BMC Musculoskeletal Disorders. 2022; 23(1)
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41 Study protocol: understanding pain after dental procedures, an observational study within the National Dental PBRN
Elisabeth Kalenderian, Joel White, Alfa-Ibrahim Yansane, Janelle Urata, David Holmes, Kimberly Funkhouser, Rahma Mungia, Jin Xiao, Cindy Rauschenberger, Ana Ibarra-Noriega, Duong Tran, D. Brad Rindal, Heiko Spallek, Muhammad Walji
BMC Oral Health. 2022; 22(1)
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42 Patient reported outcomes in oncology: changing perspectives—a systematic review
Augusta Silveira, Teresa Sequeira, Joaquim Gonçalves, Pedro Lopes Ferreira
Health and Quality of Life Outcomes. 2022; 20(1)
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43 Quality of life and frailty outcomes following surgical and transcatheter aortic valve replacement
Timothy Luke Surman, John Matthew Abrahams, Jaewon Kim, Hayley Elizabeth Surman, Ross Roberts-Thomson, Joseph Matthew Montarello, James Edwards, Michael Worthington, John Beltrame
Journal of Cardiothoracic Surgery. 2022; 17(1)
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44 Patient reported outcomes for phosphomannomutase 2 congenital disorder of glycosylation (PMM2-CDG): listening to what matters for the patients and health professionals
C. Pascoal, I. Ferreira, C. Teixeira, E. Almeida, A. Slade, S. Brasil, R. Francisco, A. N. Ligezka, E. Morava, H. Plotkin, J. Jaeken, P. A. Videira, L. Barros, V. dos Reis Ferreira
Orphanet Journal of Rare Diseases. 2022; 17(1)
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45 Perceived helpfulness of service sectors used for mental and substance use disorders: Findings from the WHO World Mental Health Surveys
Meredith G. Harris, Alan E. Kazdin, Richard J. Munthali, Daniel V. Vigo, Irving Hwang, Nancy A. Sampson, Ali Al-Hamzawi, Jordi Alonso, Laura Helena Andrade, Guilherme Borges, Brendan Bunting, Silvia Florescu, Oye Gureje, Elie G. Karam, Sing Lee, Fernando Navarro-Mateu, Daisuke Nishi, Charlene Rapsey, Kate M. Scott, Juan Carlos Stagnaro, Maria Carmen Viana, Bogdan Wojtyniak, Miguel Xavier, Ronald C. Kessler
International Journal of Mental Health Systems. 2022; 16(1)
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46 Racial Differences in Treatments and Toxicity in Patients With Non–Small-Cell Lung Cancer Treated With Thoracic Radiation Therapy
Anna Mary Brown Laucis, Kimberly A. Hochstedler, Matthew J. Schipper, Peter A. Paximadis, Thomas P. Boike, Derek P. Bergsma, Benjamin Movsas, Annette Kretzler, Daniel E. Spratt, Robert T. Dess, Melissa A. Mietzel, Michael M. Dominello, Martha M. Matuszak, Reshma Jagsi, James A. Hayman, Lori J. Pierce, Shruti Jolly
JCO Oncology Practice. 2022;
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47 Values of Retinoblastoma Survivors and Parents Regarding Treatment Outcomes: A Qualitative Study
Ana Janic, Ajoy Vincent, Jennifer Stinson, Helen Dimaras
JCO Oncology Practice. 2022;
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48 Value Insider Season 1 Episode 2: How to Measure Quality of Life and Utility? (QoL) [Podcast]
Nancy J Devlin, Elisabeth Sophia Hartgers-Gubbels, Michael Chambers
International Journal of General Medicine. 2022; Volume 15: 7773
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49 The Potential Role of Dental Patient-Reported Outcomes (dPROs) in Evidence-Based Prosthodontics and Clinical Care: A Narrative Review
Cláudio Rodrigues Leles, Jésio Rodrigues Silva, Thalita Fernandes Fleury Curado, Martin Schimmel, Gerald McKenna
Patient Related Outcome Measures. 2022; Volume 13: 131
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50 In-hospital enrollment into an electronic patient portal results in improved follow-up after orthopedic surgery: Cluster Randomized Trial (Preprint)
Abhiram R. Bhashyam, Mira Bansal, Madeline M. McGovern, Quirine MJ van der Vliet, Marilyn Heng
JMIR Perioperative Medicine. 2022;
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51 Analyzing user engagement within a patient-reported outcomes texting tool for diabetes management (Preprint)
Soumik Mandal, Hayley Belli, Jocelyn Cruz, Devin Mann, Antoinette Schoenthaler
JMIR Diabetes. 2022;
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52 Towards Symptom-Specific Intervention Recommendation Systems
John Michael Templeton, Christian Poellabauer, Sandra Schneider
Journal of Parkinson's Disease. 2022; : 1
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53 A Study Protocol for the Management of Children With Juvenile Idiopathic Arthritis Based on ePROs
Biyu Shen, Songsong Shi, Hengmei Cui, Yunyun Li, Haoyang Chen, Huan Jin, Jia Xu, Zuojia Liu, Yanliang Jin
Frontiers in Pediatrics. 2022; 10
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54 Patient reported quality of life in young adults with sarcoma receiving care at a sarcoma center
Jonathan R. Day, Benjamin Miller, Bradley T. Loeffler, Sarah L. Mott, Munir Tanas, Melissa Curry, Jonathan Davick, Mohammed Milhem, Varun Monga
Frontiers in Psychology. 2022; 13
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55 Quality of Life (QoL) of Children and Adolescents Participating in a Precision Medicine Trial for High-Risk Childhood Cancer
Kate Hetherington, Claire E. Wakefield, Kavitha P. K. Kunalan, Mark W. Donoghoe, Brittany C. McGill, Joanna E. Fardell, Rebecca Daly, Rebecca J. Deyell, David S. Ziegler
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56 Patient-reported outcome measures in spine surgery: A systematic review
Adam Beighley, Allen Zhang, Brendan Huang, Christopher Carr, Mansour Mathkour, Cassidy Werner, Tyler Scullen, MitchellD Kilgore, ChristopherM Maulucci, RobertF Dallapiazza, James Kalyvas
Journal of Craniovertebral Junction and Spine. 2022; 13(4): 378
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57 Patient-Generated health data: The high-tech high-touch approach: Where technology meets healthcare – A narrative review
Naseema Shafqat, Ranjana Verma, Surya Bali, TJisa George
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58 Patient-Reported Outcomes Measures in Cardiovascular Disease: An Evidence Map of the Psychometric Properties of Health Status Instruments
Derek S. Chew, Sera Whitelaw, Muthiah Vaduganathan, Daniel B. Mark, Harriette G.C. Van Spall
Annals of Internal Medicine. 2022;
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59 Research Question, Objectives, and Endpoints in Clinical and Oncological Research: A Comprehensive Review
Addanki Purna singh, Praveen R Shahapur, Sabitha Vadakedath, Vallab Ganesh Bharadwaj, Dr Pranay Kumar , Venkata BharatKumar Pinnelli, Vikram Godishala, Venkataramana Kandi
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60 Perception and Belief on Cannabinoids: A Comparative Study of Rheumatology Patients and Primary Care Physicians on the Use of Cannabinoids for Pain Management
Nibha Jain,Neelima Reddy Kunam,Arumugam Moorthy
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61 The Effects of Depression and Anti-Depressants on Quality of Life After Breast Reconstruction: A Post-Hoc Analysis
Kevin M Klifto,Faraah N Bekheet,Michele A Manahan,Kristen P Broderick,Damon S Cooney,Gedge D Rosson,Carisa M Cooney
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62 Effect of Play2Sleep on mother- and father-reported infant sleep: a sequential explanatory mixed methods study of a randomized controlled trial
Elizabeth M. Keys,Karen M. Benzies,Valerie G Kirk,Linda Duffett-Leger
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63 Cultural Adaptation and Psychometric Properties of the Diabetes Quality of Life Scale in Afaan Oromoo among People Living with Type 2 Diabetes in Ethiopia
Dereje Chala Diriba,Doris Y. P. Leung,Lorna K. P. Suen
International Journal of Environmental Research and Public Health. 2021; 18(14): 7435
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64 Overactive Bladder: Where We Are and Where We Are Going
Charan S. Mohan,Wai Lee,Kathleen C. Kobashi
Société Internationale d’Urologie Journal. 2021; (5): 311
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65 Measurement Properties of the Canadian Occupational Performance Measure: A Systematic Review
Kanta Ohno, Kounosuke Tomori, Tatsunori Sawada, Yousuke Seike, Ayana Yaguchi, Ryuji Kobayashi
The American Journal of Occupational Therapy. 2021; 75(6)
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66 Acceptability of a Patient Portal (Opal) in HIV Clinical Care: A Feasibility Study
Dominic Chu,Tibor Schuster,David Lessard,Kedar Mate,Kim Engler,Yuanchao Ma,Ayoub Abulkhir,Anish Arora,Stephanie Long,Alexandra de Pokomandy,Karine Lacombe,Hayette Rougier,Joseph Cox,Nadine Kronfli,Tarek Hijal,John Kildea,Jean-Pierre Routy,Jamil Asselah,Bertrand Lebouché
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67 Patient-Reported Outcomes following Genetic Testing for Familial Hypercholesterolemia, Breast and Ovarian Cancer Syndrome, and Lynch Syndrome: A Systematic Review
Rachele M. Hendricks-Sturrup,Lucson Joseph,Christine Y. Lu
Journal of Personalized Medicine. 2021; 11(9): 850
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68 Requirements and Architecture of a Cloud Based Insomnia Therapy and Diagnosis Platform: A Smart Cities Approach
Daniel Reichenpfader, Sten Hanke
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69 Health Inequality Analysis in Europe: Exploring the Potential of the EQ-5D as Outcome
Inge Spronk, Juanita A. Haagsma, Erica I. Lubetkin, Suzanne Polinder, M. F. Janssen, G. J. Bonsel
Frontiers in Public Health. 2021; 9
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70 Changes in the Vaginal Microbiome and Associated Toxicities Following Radiation Therapy for Gynecologic Cancers
Despina Tsementzi, Rebecca Meador, Tony Eng, Pretesh Patel, Joseph Shelton, Jessica Arluck, Isabelle Scott, Mary Dolan, Namita Khanna, Konstantinos T. Konstantinidis, Deborah Watkins Bruner
Frontiers in Cellular and Infection Microbiology. 2021; 11
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71 Effect of Daily Usage Time of 4% Hydrogen Peroxide on the Efficacy and Bleaching-induced Tooth Sensitivity: A Single-blind Randomized Clinical Trial
RMO Terra, KL da Silva, L Vochikovski, E Sutil, M Rezende, AD Loguercio, A Reis
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72 The reliability of patient-reported outcomes in patients with chronic low back pain when answered in online, telephone, and face-to-face interview format
Ceyhun TÜRKMEN, Hasan Erkan KILINÇ
Journal of Basic and Clinical Health Sciences. 2021;
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73 The health-related quality of life of patients with a benign gynecological condition: a 2-year follow-up
Kristiina Pynnä,Pirjo Räsänen,Harri Sintonen,Risto P Roine,Piia Vuorela
Journal of Comparative Effectiveness Research. 2021;
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74 The impact of COVID-19 related restrictions on social and daily activities of parents, people with disabilities and older adults: Protocol for a longitudinal, mixed-methods study. (Preprint)
Holly Reid,William Cameron Miller,Elham Esfandiari,Somayyeh Mohammadi,Isabelle Rash,Gordon Tao,Ethan Simpson,Kai Leong,Parmeet Matharu,Brodie Sakakibara,Julia Schmidt,Tal Jarus,Susan Forwell,Jaimie Borisoff,Catherine Backman,Adam Alic,Emily Brooks,Janice Chan,Elliott Flockhart,Jessica Irish,Chihori Tsukura,Nicole Dispirito,Ben Mortenson
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75 The Development of a Digital Patient Reported Outcome Measurement for Adults with Chronic Disease: The Parsley Symptom Index (Preprint)
Hants Williams,Sarah Steinberg,Robin Berzin
JMIR Formative Research. 2021;
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76 The Good Enough Parenting early intervention schema therapy based program: Participant experience
John Philip Louis,Vida Ortiz,Joanna Barlas,Joyce Sue Lee,George Lockwood,Wayne Freeman Chong,Karen McDonald Louis,Patricia Sim,Bronwyn Myers
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77 Bayesian Hierarchical Factor Analysis for Efficient Estimation Across Race/Ethnicity
Jinxiang Hu, Lauren Clark, Peng Shi, Vincent Staggs, Christine Daley, Byron Gajewski
Revista Colombiana de Estadística. 2021; 44(2): 313
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78 Neck Disability Index in patients with cervicogenic headache
M.A. Bakhtadze,I.V. Lusnikova,D.A. Bolotov,K.O. Kuzminov
Russian Journal of Pain. 2021; 19(1): 25
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79 Optimal Thyroid Hormone Replacement
Jacqueline Jonklaas
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80 Validation of the Korean Version of the Patient-Reported Outcomes Information System® Emotional Distress Measures
Heeseung Choi,Heesung Ko,Chanhee Kim
Journal of Korean Academy of psychiatric and Mental Health Nursing. 2021; 30(2): 102
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81 Patient-reported outcome and experience measures for peripheral venous catheters: a scoping review protocol
Emily N Larsen, Joshua Byrnes, Nicole Marsh, Claire M Rickard
British Journal of Nursing. 2021; 30(19): S30
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82 Patient-Reported Outcomes in Patients With PIK3CA-Mutated Hormone Receptor–Positive, Human Epidermal Growth Factor Receptor 2–Negative Advanced Breast Cancer From SOLAR-1
Eva Maria Ciruelos,Hope S. Rugo,Ingrid A. Mayer,Christelle Levy,Frédéric Forget,Juan Ignacio Delgado Mingorance,Tamar Safra,Norikazu Masuda,Yeon Hee Park,Dejan Juric,Pierfranco Conte,Mario Campone,Sibylle Loibl,Hiroji Iwata,Xiaolei Zhou,Jinhee Park,Antonia Ridolfi,Ines Lorenzo,Fabrice André
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83 Cross-cultural adaptation and psychometric validation of the Indonesian version of the Oxford Hip Score
Jamot Silitonga,Yoshi Pratama Djaja,Ismail Hadisoebroto Dilogo,Ludwig Andribert Powantia Pontoh
Bone & Joint Open. 2021; 2(9): 765
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84 Patient-Reported OUtcome measures in key African languages to promote Diversity in research and clinical practice (PROUD)—protocol for a systematic review of measurement properties
Martin Heine,Lidwine B. Mokkink,Chanel van Zyl,Wayne Derman,Susan Hanekom
Trials. 2021; 22(1)
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85 Epilepsy and quality of life in Iranian epileptic patients
Bahareh Honari,Seyed Mehran Homam,Maryam Nabipour,Zahra Mostafavian,Arezou Farajpour,Nyusha Sahbaie
Journal of Patient-Reported Outcomes. 2021; 5(1)
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86 Patient-reported outcomes in breast cancer FDA drug labels and review documents
Kyungwan Hong,Kayleigh R. Majercak,Ester Villalonga-Olives,Eleanor M. Perfetto
Journal of Patient-Reported Outcomes. 2021; 5(1)
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87 Qualitative and psychometric approaches to evaluate the PROMIS pain interference and sleep disturbance item banks for use in patients with rheumatoid arthritis
Brandon Becker,Kimberly Raymond,Carol Hawkes,April Mitchell Foster,Andrew Lovley,Cory Saucier,Avery A. Rizio,Jakob Bue Bjorner,Mark Kosinski
Journal of Patient-Reported Outcomes. 2021; 5(1)
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88 Examining minimal important change of the Canadian Occupational Performance Measure for subacute rehabilitation hospital inpatients
Kanta Ohno, Kounosuke Tomori, Tatsunori Sawada, Ryuji Kobayashi
Journal of Patient-Reported Outcomes. 2021; 5(1)
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89 Trajectories of Health-Related Quality of Life, Health Literacy, and Self-Efficacy in Curatively-Treated Patients with Esophageal Cancer: A Longitudinal Single-Center Study in Italy
Arianna Magon, Rosario Caruso, Andrea Sironi, Sabrina Mirabella, Federica Dellafiore, Cristina Arrigoni, Luigi Bonavina
Journal of Patient Experience. 2021; 8: 2374373521
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90 Implementation of a standard outcome set in perinatal care: a qualitative analysis of barriers and facilitators from all stakeholder perspectives
Anne L. Depla,Neeltje M. Crombag,Arie Franx,Mireille N. Bekker
BMC Health Services Research. 2021; 21(1)
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91 Electronic health record–integrated approach for collection of patient-reported outcome measures: a retrospective evaluation
Maggie E. Horn,Emily K. Reinke,Richard C. Mather,Jonathan D. O’Donnell,Steven Z. George
BMC Health Services Research. 2021; 21(1)
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92 Correlation and responsiveness of global health, upper extremity-specific, and shoulder-specific functional outcome measures following reverse total shoulder arthroplasty for proximal humerus fracture
James Barger,Dafang Zhang,Derek S. Stenquist,Peter Ostergaard,Matthew Hall,George S. M. Dyer,Brandon E. Earp,Arvind von Keudell
BMC Musculoskeletal Disorders. 2021; 22(1)
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93 Normative PROMIS Scores in Healthy Collegiate Athletes: Establishing a Target for Return to Function in the Young Adult Athlete
Arya Minaie, David L. Bernholt, Andrew M. Block, Ronak M. Patel, Rick W. Wright, Matthew J. Matava, Jeffrey J. Nepple
Orthopaedic Journal of Sports Medicine. 2021; 9(8): 2325967121
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94 Treatment satisfaction in 5q-spinal muscular atrophy under nusinersen therapy
Alma Osmanovic, Gresa Ranxha, Mareike Kumpe, Claudia D. Wurster, Benjamin Stolte, Isabell Cordts, René Günther, Maren Freigang, Lars H. Müschen, Camilla Binz, Andreas Hermann, Marcus Deschauer, Paul Lingor, Albert C. Ludolph, Tim Hagenacker, Olivia Schreiber-Katz, Susanne Petri
Therapeutic Advances in Neurological Disorders. 2021; 14: 1756286421
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95 Does Smoking Affect Short-Term Patient-Reported Outcomes After Lumbar Decompression?
Dhruv K. C. Goyal,Srikanth N. Divi,Daniel R. Bowles,Victor E. Mujica,I. David Kaye,Mark F. Kurd,Barrett I. Woods,Kris E. Radcliff,Jeffrey A. Rihn,D. Greg Anderson,Alan S. Hilibrand,Christopher K. Kepler,Alexander R. Vaccaro,Gregory D. Schroeder
Global Spine Journal. 2021; 11(5): 727
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96 Estimating Power for Clinical Trials with Patient Reported Outcomes - using Item Response Theory
Jinxiang Hu,Jeffrey Thompson,Dinesh Pal Mudaranthakam,Lynn Chollet Hinton,David Streeter,Michele Park,Berend Terluin,Byron Gajewski
Journal of Clinical Epidemiology. 2021;
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97 Early Improvement in Patient-Reported Outcome Scores After Operative Treatment of Osteochondritis Dissecans of the Humeral Capitellum
Mitchel R. Obey,Charles A. Goldfarb,J. Sam Broughton,Sandra S. Gebhart,Matthew V. Smith
The Journal of Hand Surgery. 2021;
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98 Myeloproliferative Neoplasm Symptom Assessment Form - Total Symptom Score (MPN-SAF TSS) questionnaire: translation, cultural adaptation and validation to Brazilian Portuguese
Mariana Guarana,Andréa Soares,Adelmo Daumas,Irene Biasoli,Cristiana Solza
Hematology, Transfusion and Cell Therapy. 2021;
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99 Construct and criterion validity of Patient-Reported Outcomes (PROs) for depression: A clinimetric comparison
Danilo Carrozzino,Kaj Sparle Christensen,Fiammetta Cosci
Journal of Affective Disorders. 2021;
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100 Rhinitis and Asthma Patient Perspective (RAPP): Clinical Utility and Predictive Value
Ilaria Baiardini, Salvatore Fasola, Stefania La Grutta, Elisa Trucco, Giorgio Walter Canonica, Fulvio Braido
The Journal of Allergy and Clinical Immunology: In Practice. 2021;
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101 Patient-Reported Outcomes in Sarcoma: a scoping review
Ana Maria Almeida,Teresa Martins,Lígia Lima
European Journal of Oncology Nursing. 2021; : 101897
[Pubmed] | [DOI]
102 Patient-Reported Atrial Fibrillation After Septal Myectomy for Hypertrophic Cardiomyopathy
Daokun Sun, Hartzell V. Schaff, Rick A. Nishimura, Jeffrey B. Geske, Joseph A. Dearani, Darrell B. Newman, Steve R. Ommen
The Annals of Thoracic Surgery. 2021;
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103 Correlation of the Single-Assessment Numeric Evaluation (SANE) Score With Hip-Specific Patient-Reported Outcome Measures
Guillaume D. Dumont,Rachel L. Glenn,Nicole C. Battle,Zachary T. Thier
Arthroscopy, Sports Medicine, and Rehabilitation. 2021; 3(2): e435
[Pubmed] | [DOI]
104 Age Significantly Affects Response Rate to Outcomes Questionnaires Using Mobile Messaging Software
Toufic R. Jildeh,Joshua P. Castle,Muhammad J. Abbas,Miriam E. Dash,Noel O. Akioyamen,Kelechi R. Okoroha
Arthroscopy, Sports Medicine, and Rehabilitation. 2021;
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105 Functional Outcomes and Health-Related Quality of Life Before and After Primary Total Knee Replacement for Patients from Diverse Geographic Regions
Minji K. Lee,James M. Naessens,David T. Eton,Thomas O’Byrne,Mark A. Nyman
The Journal of Arthroplasty. 2021;
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106 Patient-Reported Experience and Outcome Measures in People Living with Diabetes: A Scoping Review of Instruments
Jimmy Martin-Delgado,Mercedes Guilabert,José Mira-Solves
The Patient - Patient-Centered Outcomes Research. 2021;
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107 The Challenges of Outcomes-Based Contract Implementation for Medicines in Europe
Natalie Bohm,Sarah Bermingham,Frank Grimsey Jones,Daniela C. Gonçalves-Bradley,Alex Diamantopoulos,Jessica R. Burton,Hamish Laing
PharmacoEconomics. 2021;
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108 A Novel Qualitative Study Assessing Patient-Reported Outcome Measures Among People Living with Psoriatic Arthritis or Ankylosing Spondylitis
Soumya D. Chakravarty,Jill Abell,Megan Leone-Perkins,Ana-Maria Orbai
Rheumatology and Therapy. 2021;
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109 Questionnaires to Evaluate Lower Urinary Tract Symptoms in Men and Women
Zoe S. Gan,Ariana L. Smith
Current Bladder Dysfunction Reports. 2021;
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110 Validation of the Italian HeartQoL: a short health-related quality of life questionnaire for patients with ischemic heart disease
Francesco Fattirolli,Alessia Argirò,Maria Elisabetta Angelino,Gianluigi Balestroni,Francesco Giallauria,Daniela Miani,Carlo Vigorito,Lucrezia Piccioli,Franco Tarro Genta,Stefan Höfer,Niccolò Marchionni,Neil Oldridge
Internal and Emergency Medicine. 2021;
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111 Patient-reported outcomes and the identification of subgroups of atrial fibrillation patients: a retrospective cohort study of linked clinical registry and administrative data
Jae-Yung Kwon,Richard Sawatzky,Jennifer Baumbusch,Pamela A. Ratner
Quality of Life Research. 2021;
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112 Agreement between proxy- and self-report scores on PROMIS health-related quality of life domains in pediatric burn survivors: a National Institute on Disability, Independent Living, and Rehabilitation Research Burn Model System Study
Alyssa M. Bamer,Kara McMullen,Steven E. Wolf,Barclay T. Stewart,Lewis Kazis,Camerin A. Rencken,Dagmar Amtmann
Quality of Life Research. 2021;
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113 PROMIS Global Health: Feasibility in home health
Jennifer S. Riggs,Marisa Roczen,Alan Levitt,Tara McMullen,Joan Proctor,Eugene Nuccio
Quality of Life Research. 2021;
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114 The Patient Reported Outcomes as a Clinical Tool (PROACT) Pilot Study: What Can be Gained by Sharing Computerized Patient-Reported Mental Health and Substance Use Symptoms with Providers in HIV Care?
Sarah M. Jabour,Geetanjali Chander,Kristin A. Riekert,Jeanne C. Keruly,Kayla Herne,Heidi Hutton,Mary Catherine Beach,Bryan Lau,Richard D. Moore,Anne K. Monroe
AIDS and Behavior. 2021;
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115 Comparison of Bazaz scale, Dysphagia Short Questionnaire, and Hospital for Special Surgery-Dysphagia and Dysphonia Inventory for Assessing Dysphagia Symptoms After Anterior Cervical Spine Surgery in Chinese Population
Guoyan Liang,Xiaoqing Zheng,Changxiang Liang,Chong Chen,Yongxiong Huang,Shuaihao Huang,Yunbing Chang
Dysphagia. 2021;
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116 The impact of patient-reported outcomes on loss to follow-up care after bariatric surgery
Alexandra Jacobs,Paige Martinez,Ellen Morrow,Anna Ibele
Surgical Endoscopy. 2021;
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117 Long-Term Observational Results from the ASPIRE Study: OnabotulinumtoxinA Treatment for Adult Lower Limb Spasticity
Alberto Esquenazi,Ganesh Bavikatte,Daniel S. Bandari,Wolfgang H. Jost,Michael C. Munin,Simon Fuk Tan Tang,Joan Largent,Aubrey Manack Adams,Aleksej Zuzek,Gerard E. Francisco
PM&R. 2021;
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118 Quality of patient-reported outcomes in oncology clinical trials using immune checkpoint inhibitors: A systematic review
Eoghan Malone,Reeta Barua,Nicholas Meti,Xuan Li,Rouhi Fazelzad,Aaron R. Hansen
Cancer Medicine. 2021;
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119 Health-related quality of life in left ventricular assist device-supported patients
Osnat Itzhaki Ben Zadok,Binyamin Ben-Avraham,Tiny Jaarsma,Aviv Shaul,Yoav Hammer,Yaron D. Barac,Israel Mats,Orit Eldar,Miriam Abuhazira,Vicky Yaari,Dmitry Gulobov,Mastwal Mulu,Dan Aravot,Ran Kornowski,Tuvia Ben-Gal
ESC Heart Failure. 2021;
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120 Natural history study of adults with Wolf–Hirschhorn syndrome 2: Patient-reported outcomes study
John C. Carey,Amanda Lortz,Alyssa Mendel,Agatino Battaglia
American Journal of Medical Genetics Part A. 2021;
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121 Patient-Reported Goals of Youths in Canada Receiving Medication-Assisted Treatment for Opioid Use Disorder
Darren Chai,Tea Rosic,Balpreet Panesar,Nitika Sanger,Emma A. van Reekum,David C. Marsh,Andrew Worster,Lehana Thabane,Zainab Samaan
JAMA Network Open. 2021; 4(8): e2119600
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122 Effectiveness of interdisciplinary combined dermatology–gastroenterology–rheumatology clinical care compared to usual care in patients with immune-mediated inflammatory diseases: a parallel group, non-blinded, pragmatic randomised trial
Kasper Fjellhaugen Hjuler,Anders Dige,Jørgen Agnholt,Trine Bay Laurberg,Anne Gitte Loft,Louise Faurskov Møller,Robin Christensen,Lars Iversen
BMJ Open. 2021; 11(4): e041871
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123 Are patients’ goals in treatment associated with expected treatment outcomes? Findings from a mixed-methods study on outpatient pharmacological treatment for opioid use disorder
Tea Rosic,Leen Naji,Balpreet Panesar,Darren B Chai,Nitika Sanger,Brittany B Dennis,David C Marsh,Launette Rieb,Andrew Worster,Lehana Thabane,Zainab Samaan
BMJ Open. 2021; 11(1): e044017
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124 Assessment of patient-reported outcomes after polytrauma – instruments and methods: a systematic review
Michaela Ritschel, Silke Kuske, Irmela Gnass, Silke Andrich, Kai Moschinski, Sandra Olivia Borgmann, Annegret Herrmann-Frank, Maria-Inti Metzendorf, Charlotte Wittgens, Sascha Flohé, Johannes Sturm, Joachim Windolf, Andrea Icks
BMJ Open. 2021; 11(12): e050168
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125 Development and validation of a patient-reported outcome in systemic sclerosis: the Hand scleroDerma lived Experience (HAnDE) scale
J. Sibeoni, B. Dunogue´, A. Dupont, D. Haiddar, N. Benmostefa, B. Falissard, L. Mouthon, A. Re´vah-Levy, L. Verneuil
British Journal of Dermatology. 2021;
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126 Estimating the health-related quality of life of kidney stone patients: initial results from the Wisconsin Stone Quality of Life Machine-Learning Algorithm (WISQOL-MLA)
David-Dan Nguyen,Jack W. Luo,Xing Han Lu,Seth K. Bechis,Roger L. Sur,Stephen Y. Nakada,Jodi A. Antonelli,Necole M. Streeper,Sri Sivalingam,Davis P. Viprakasit,Timothy D. Averch,Jaime Landman,Thomas Chi,Vernon M. Pais,Ben H. Chew,Vincent G. Bird,Sero Andonian,Noah E. Canvasser,Jonathan D. Harper,Kristina L. Penniston,Naeem Bhojani
BJU International. 2021; 128(1): 88
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127 Development and validation of a patient-reported outcome measure for patients with chronic respiratory failure: The CRF-PROM scale
Hangzhi He,Hao Li,Xianhua Zeng,Hui Zhao,Yanbo Zhang
Health Expectations. 2021;
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128 Development and validation in Ecuador of the EPD Questionnaire, a diabetes-specific patient-reported experience and outcome measure: A mixed-methods study
Jimmy Martin-Delgado,Aurora Mula,Mercedes Guilabert,Carlos Solís,Lorena Gómez,Gustavo Ramirez Amat,José Joaquin Mira
Health Expectations. 2021;
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129 Health-related quality of life and disability in adults with juvenile idiopathic arthritis: comparison with adult-onset rheumatic diseases
Filipa Oliveira Ramos, Ana Rodrigues, Fernando Magalhaes Martins, Ana Teresa Melo, Francisca Aguiar, Luisa Brites, Soraia Azevedo, Ana Catarina Duarte, Carolina Furtado, Ana Filipa Mourão, Graça Sequeira, Inês Cunha, Ricardo Figueira, Jose Antonio Melo Gomes, Maria Jose Santos, Joao Eurico Fonseca
RMD Open. 2021; 7(3): e001766
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130 Clinimetric Criteria for Patient-Reported Outcome Measures
Danilo Carrozzino, Chiara Patierno, Jenny Guidi, Carmen Berrocal Montiel, Jianxin Cao, Mary E. Charlson, Kaj Sparle Christensen, John Concato, Carlos De las Cuevas, Jose de Leon, Ajandek Eöry, Marcelo Pio Fleck, Toshi A. Furukawa, Ralph I. Horwitz, Andrew A. Nierenberg, Chiara Rafanelli, Hongxing Wang, Thomas N. Wise, Nicoletta Sonino, Giovanni A. Fava
Psychotherapy and Psychosomatics. 2021; 90(4): 222
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131 Pharmacist-led interventions for people living with severe and persistent mental illness: A systematic review
Ricki Ng, Sarira El-Den, Victoria Stewart, Jack C Collins, Helena Roennfeldt, Sara S McMillan, Amanda J Wheeler, Claire L O’Reilly
Australian & New Zealand Journal of Psychiatry. 2021; : 0004867421
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132 Living with a hernia: A qualitative study of patient experience of abdominal wall hernias in Ndola, Zambia
Elin Ljungstrom, Felix Chibwe, Catherine O’Brien, Joseph Musowoya, Caris E Grimes
Tropical Doctor. 2021; 51(4): 671
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133 Feasibility of implementing a same-day electronic screening tool for clinical assessment to measure patient-reported outcomes for eliciting actionable information on adherence to HIV medication and related factors in a busy Canadian urban HIV clinic
Shivali Suri, Deborah Yoong, Duncan Short, Darrell HS Tan, Mark Naccarato, Heidi M Crane, Alexandra Musten, Rob J Fredericksen, William B Lober, Kevin Gough
International Journal of STD & AIDS. 2021; : 0956462421
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134 Mandibular residual ridge morphology in relation to complete dentures and implant overdentures–Part II : Predictors for effectiveness of implant overdenture therapy
Yuning Xia,Chufan Ma,Jihua Chen,Dick J. Witter,Qian Zhang,Nico H. J. Creugers
Clinical Implant Dentistry and Related Research. 2021;
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135 The Majority of Patient-reported Outcome Measures in Pediatric Orthopaedic Research Are Used Without Validation
Gabriel R. Arguelles,Max Shin,Drake G. Lebrun,Mininder S. Kocher,Keith D. Baldwin,Neeraj M. Patel
Journal of Pediatric Orthopaedics. 2021; 41(1): e74
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136 Letter to the Editor: A Day at the Office: Does Limiting the Scope of Practice of our Surgeons Improve Patient Care?
William F. Sherman
Clinical Orthopaedics & Related Research. 2021; 479(3): 639
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137 Patient-Reported Outcomes in Inflammatory Bowel Diseases: Another Piece in the Puzzle
S Restellini, P L Lakatos
Journal of Crohn's and Colitis. 2021; 15(7): 1085
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138 Patients’ perspectives on a drug safety monitoring system for immune-mediated inflammatory diseases based on patient-reported outcomes
Leanne J Kosse,Gerda Weits,Harald E Vonkeman,Sander W Tas,Frank Hoentjen,Martijn BA van Doorn,Phyllis I Spuls,Geert R D’Haens,Michael T Nurmohamed,Eugène P van Puijenbroek,Bart JF van den Bemt,Naomi T Jessurun
Expert Opinion on Drug Safety. 2021;
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139 Prospective versus retrospective recordings of comorbidities and complications in bladder cancer patients undergoing radical cystectomy – a randomized controlled trial
Christine Schmidt Andersen, Bente Thoft Jensen, Emil Nielsen Holck, Pernille Skjold Kingo, Jørgen Bjerggaard Jensen
Scandinavian Journal of Urology. 2021; : 1
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140 Cohort profile: A super-elderly population-based cohort in Japan (the Sukagawa Study)
Toru Naganuma,Sei Takahashi,Taro Takeshima,Noriaki Kurita,Kenji Omae,Takashi Yoshioka,Tsuyoshi Ohnishi,Fumihito Ito,Shingo Fukuma,Sugihiro Hamaguchi,Shunichi Fukuhara
International Journal of Epidemiology. 2021;
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141 Redefining therapeutic success in HIV patients: an expert view
Antonio Antela,Antonio Rivero,Josep M Llibre,Santiago Moreno,Antonio Antela,Josep M Llibre,Santiago Moreno,Antonio Rivero,Marta Alonso Montero,Enrique Bernal,José Ramón Blanco Ramos,Manuel Castaño,David Dalmau Juanola,Belén de la Fuente García,Carlos Dueñas,Nuria Espinosa,Vicente Estrada,María José Galindo Puerto,Miguel García del Toro,Juan González,Miguel Górgolas,Carmen Hidalgo-Tenorio,Hernando Knobel Freu,Juan Carlos López Bernaldo de Quirós,Juan Macías Sánchez,Carlos Martín Ruíz,Esteban Martínez Chamorro,Mar Masía,Máximo Miguelez,Celia Miralles,Julián Olalla,Esteban Ribera Pascuet,Francisco Rodríguez-Vidigal,Rafael Rubio,Jesús Santos
Journal of Antimicrobial Chemotherapy. 2021;
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142 A novel application of SMART on FHIR architecture for interoperable and scalable integration of patient-reported outcome data with electronic health records
Deliya B Wesley,Joseph Blumenthal,Shrenikkumar Shah,Robin Littlejohn,Zoe Pruitt,Ram Dixit,Chun-Ju Hsiao,Christine Dymek,Raj Ratwani
Journal of the American Medical Informatics Association. 2021;
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143 The impact of location and patency of the arteriovenous fistula on quality of life of kidney transplant recipients
Krzysztof Letachowicz,Klaudia Bardowska,Tomasz Królicki,Dorota Kaminska,Miroslaw Banasik,Karolina Zajdel,Oktawia Mazanowska,Katarzyna Madziarska,Dariusz Janczak,Magdalena Krajewska
Renal Failure. 2021; 43(1): 113
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144 Addiction treatment in the postpartum period: an opportunity for evidence-based personalized medicine
Caitlin E. Martin,Anna Beth Parlier-Ahmad
International Review of Psychiatry. 2021; : 1
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145 Speech in implant-supported and removable complete denture wearers: A systematic review
Ingrid Andrade Meira,Lorena Tavares Gama,Daniela Almeida Prado-Tozzi,Mayara Abreu Pinheiro,Renata Cunha Matheus Rodrigues Garcia
The Journal of Prosthetic Dentistry. 2021;
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146 Predicting Communicative Participation in Adults Across Communication Disorders
Jingyu Linna Jin,Carolyn Baylor,Kathryn Yorkston
American Journal of Speech-Language Pathology. 2021; : 1
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147 A Delphi-method-based consensus guideline for definition of treatment-resistant depression for clinical trials
Luca Sforzini, Courtney Worrell, Melisa Kose, Ian M. Anderson, Bruno Aouizerate, Volker Arolt, Michael Bauer, Bernhard T. Baune, Pierre Blier, Anthony J. Cleare, Philip J. Cowen, Timothy G. Dinan, Andrea Fagiolini, I. Nicol Ferrier, Ulrich Hegerl, Andrew D. Krystal, Marion Leboyer, R. Hamish McAllister-Williams, Roger S. McIntyre, Andreas Meyer-Lindenberg, Andrew H. Miller, Charles B. Nemeroff, Claus Normann, David Nutt, Stefano Pallanti, Luca Pani, Brenda W. J. H. Penninx, Alan F. Schatzberg, Richard C. Shelton, Lakshmi N. Yatham, Allan H. Young, Roland Zahn, Georgios Aislaitner, Florence Butlen-Ducuing, Christine Fletcher, Marion Haberkamp, Thomas Laughren, Fanni-Laura Mäntylä, Koen Schruers, Andrew Thomson, Gara Arteaga-Henríquez, Francesco Benedetti, Lucinda Cash-Gibson, Woo Ri Chae, Heidi De Smedt, Stefan M. Gold, Witte J. G. Hoogendijk, Valeria Jordán Mondragón, Eduard Maron, Jadwiga Martynowicz, Elisa Melloni, Christian Otte, Gabriela Perez-Fuentes, Sara Poletti, Mark E. Schmidt
Molecular Psychiatry. 2021;
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148 Development and Usability Testing of a Mobile Application to Monitor Patient-Reported Outcomes after Stress Urinary Incontinence Surgery
Bilal Chughtai, Ahra Cho, Vahan Simonyan, Jialin Mao, Charles Viviano, Danica Marinac-Dabic, Shawn Menafee, Charles Rardin, Art Sedrakyan
Urology. 2021;
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149 Synergy of pandemics-social isolation is associated with worsened Parkinson severity and quality of life
Indu Subramanian, Joshua Farahnik, Laurie K. Mischley
npj Parkinson's Disease. 2020; 6(1)
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150 Palliative Liver Radiotherapy (RT) for Symptomatic Hepatocellular Carcinoma (HCC)
Cynthia S. Y. Yeung,C. L. Chiang,Natalie S. M. Wong,S. K. Ha,K. S. Tsang,Connie H. M. Ho,B. Wang,Venus W. Y. Lee,Mark K. H. Chan,Francis A. S. Lee
Scientific Reports. 2020; 10(1)
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151 A feasibility assessment of functioning and quality-of-life patient-reported outcome measures in adult epilepsy clinics: A systematic review
Felipe J.S. Jones,Farrah L. Ezzeddine,Susan T. Herman,Jeffrey Buchhalter,Brandy Fureman,Lidia M.V.R. Moura
Epilepsy & Behavior. 2020; 102: 106704
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152 The psychometric properties of the Self-Evaluation of Negative Symptoms Scale (SNS) in treatment-resistant schizophrenia (TRS)
Abraham Goldring,Sophia Borne,Amanda Hefner,Amod Thanju,Anzalee Khan,Jean-Pierre Lindenmayer
Schizophrenia Research. 2020;
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153 Predicting self-reported functional improvement one year after primary total knee arthroplasty using pre- and postoperative patient-reported outcome measures
Lieke C.M. Vissers,Ruud P. van Hove,Babette C. van der Zwaard
The Knee. 2020; 27(3): 683
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154 Effect of Different Iodine Concentrations on Patient-Reported Discomfort in Contrast-Enhanced Computed Tomography: A Prospective Comparative Trial
Janis Lucas Vahldiek,Lars-Arne Schaafs,Birgit K. Niehues,Bernd Hamm,Stefan Markus Niehues
RöFo - Fortschritte auf dem Gebiet der Röntgenstrahlen und der bildgebenden Verfahren. 2020; 192(10): 945
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155 ‘I’m over the moon!’: patient-perceived outcomes of hepatitis C treatment
Davoud Pourmarzi,Andrew Smirnov,Lisa Hall,Gerard FitzGerald,Tony Rahman
Australian Journal of Primary Health. 2020; 26(4): 319
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156 Integrating Spinal Cord Injury – Quality of Life instruments into rehabilitation: Implementation science to guide adoption of patient-reported outcome measures
Kristian P. Nitsch,Kelsey Stipp,Kristen Gracz,Linda Ehrlich-Jones,Ian D. Graham,Allen W. Heinemann
The Journal of Spinal Cord Medicine. 2020; : 1
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157 Stakeholders’ perspectives on a patient-reported outcome measure-based drug safety monitoring system for immune-mediated inflammatory diseases
Leanne J. Kosse,Naomi T. Jessurun,Harald E. Vonkeman,Sander W. Tas,Mike T. Nurmohamed,Frank Hoentjen,Martijn B.A. van Doorn,Eugène P. van Puijenbroek,Bart J.F. van den Bemt,Marieke de Vries
Expert Opinion on Drug Safety. 2020; : 1
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158 A Comparative Analysis of Surgical Scar Cosmesis Based on Operative Approach for Radical Prostatectomy
Mitchell M. Huang,Zeyad R. Schwen,Michael J. Biles,Ridwan Alam,Andrew T. Gabrielson,Hiten D. Patel,Jeff Day,Phillip M. Pierorazio,Christian P. Pavlovich
Journal of Endourology. 2020;
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159 Factors Related to Agreement Between Child and Caregiver Report of Child Functioning With Chronic Pain
Kathryn A. Birnie,Patricia A. Richardson,Adithi V. Rajagopalan,Rashmi P. Bhandari
The Clinical Journal of Pain. 2020; 36(3): 203
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160 Health and quality of life among a cohort of patients having lateral internal sphincterotomy for anal fissures
J. M. Sutherland,A. Karimuddin,G. Liu,T. Crump,H. Akbar,T. Phang,K. Redfern,S. Manoharan,C. J. Brown,M. J. Raval
Colorectal Disease. 2020;
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161 Self-rated health scores predict mortality among people with type 2 diabetes differently across three different country groupings: findings from the ADVANCE and ADVANCE-ON trials
X. Hua,T. W. C. Lung,M. Woodward,J. A. Salomon,P. Hamet,S. B. Harrap,G. Mancia,N. Poulter,J. Chalmers,P. M. Clarke
Diabetic Medicine. 2020;
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162 Patient-reported outcome measures in studies of myelodysplastic syndromes and acute myeloid leukemia: Literature review and landscape analysis
Reinhard Stauder,Jérémy Lambert,Sandra Desruol-Allardin,Isabelle Savre,Lona Gaugler,Igor Stojkov,Uwe Siebert,Hélène Chevrou-Séverac
European Journal of Haematology. 2020;
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163 Building and Deploying a COVID-19 Monitoring Solution in March
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IEEE Software. 2020; 37(5): 113
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164 Using patient-reported outcomes (PROs) and patient-reported outcome measures (PROMs) in routine head and neck cancer care: What do health professionals perceive as barriers and facilitators?
Hanh Nguyen,Phyllis Butow,Haryana Dhillon,Lucinda Morris,Alison Brown,Katrina West,Puma Sundaresan
Journal of Medical Imaging and Radiation Oncology. 2020;
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165 Carpal Tunnel Release without a Tourniquet
Oluwatobi R. Olaiya,Awwal M. Alagabi,Lawrence Mbuagbaw,Mark H. McRae
Plastic and Reconstructive Surgery. 2020; 145(3): 737
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166 Intermittently scanned continuous glucose monitoring is associated with high satisfaction but increased HbA1c and weight in well-controlled youth with type 1 diabetes
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167 Telephone health coaching with exercise monitoring using wearable activity trackers (TeGeCoach) for improving walking impairment in peripheral artery disease: study protocol for a randomised controlled trial and economic evaluation
Farhad Rezvani,Dirk Heider,Martin Härter,Hans-Helmut König,Frank Bienert,Julia Brinkmann,Lutz Herbarth,Edith Kramer,Patrick Steinisch,Frank Freudenstein,René Terhalle,Yvonne Grosse,Susanne Bock,Jacqueline Posselt,Corinna Beutel,Franziska Reif,Florian Kirchhoff,Carolin Neuschwander,Franziska Löffler,Lisa Brunner,Patrick Dickmeis,Thomas Heidenthal,Lara Schmitz,Daniela Patricia Chase,Claudia Seelenmeyer,Mark Dominik Alscher,Uwe Tegtbur,Jörg Dirmaier
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168 Role of Postoperative Patient-Reported Outcomes to Predict Ankle Arthroplasty and Arthrodesis Revision
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169 Prospects for Diminishing the Impact of Nonamyloid Small-Vessel Diseases of the Brain
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Annual Review of Pharmacology and Toxicology. 2020; 60(1): 437
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170 Patterns of Anthracycline-Based Chemotherapy-Induced Adverse Drug Reactions and Their Impact on Relative Dose Intensity among Women with Breast Cancer in Ethiopia: A Prospective Observational Study
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171 Outcomes for Pressure Ulcer Trials (OUTPUTs) project: review and classification of outcomes reported in pressure ulcer prevention research
A. Lechner,J. Kottner,S. Coleman,D. Muir,D. Beeckman,W. Chaboyer,J. Cuddigan,Z. Moore,C. Rutherford,J. Schmitt,J. Nixon,K. Balzer
British Journal of Dermatology. 2020;
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172 Practical Guide to Assessment of Patient-Reported Outcomes
Giana H. Davidson,Jason S. Haukoos,Liane S. Feldman
JAMA Surgery. 2020;
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173 Exercise therapies for preventing or treating aromatase inhibitor-induced musculoskeletal symptoms in early breast cancer
Kate E Roberts,Kirsty Rickett,Sophie Feng,Dimitrios Vagenas,Natasha E Woodward
Cochrane Database of Systematic Reviews. 2020;
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174 A review of the barriers to using Patient-Reported Outcomes (PROs) and Patient-Reported Outcome Measures (PROMs) in routine cancer care
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Journal of Medical Radiation Sciences. 2020;
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175 Can PROMIS domains of pain and physical functioning detect changes in health over time for children with sickle cell disease?
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Pediatric Blood & Cancer. 2020;
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176 Individualized OnabotulinumtoxinA Treatment for Upper Limb Spasticity Resulted in High Clinician- and Patient-Reported Satisfaction: Long-Term Observational Results from the ASPIRE Study
Gerard E. Francisco,Wolfgang H. Jost,Ganesh Bavikatte,Daniel S. Bandari,Simon F.T. Tang,Michael C. Munin,Joan Largent,Aubrey M. Adams,Aleksej Zuzek,Alberto Esquenazi
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177 The Italian cross-cultural adaptations of the paediatric International Knee Documentation Committee Score and the Hospital for Special Surgery Paediatric Functional Activity Brief Scale are reliable instruments in paediatric population
Luca Macchiarola,Alberto Grassi,Stefano Di Paolo,Nicola Pizza,Giovanni Trisolino,Stefano Stallone,Stefano Stilli,Stefano Zaffagnini
Knee Surgery, Sports Traumatology, Arthroscopy. 2020;
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178 Patient-Reported Outcomes in an Observational Cohort of HIV-1-Infected Adults on Darunavir/Cobicistat-Based Regimens: Beyond Viral Suppression
Andrea Antinori,Maria V. Cossu,Barbara Menzaghi,Gaetana Sterrantino,Nicola Squillace,Valentina Di Cristo,Annamaria Cattelan,Emanuele Focà,Antonella Castagna,Giancarlo Orofino,Daniela Valenti,Gabriella D’Ettore,Lucia Aprea,Sergio Ferrara,Maria E. Locatelli,Giordano Madeddu,Emanuele Pontali,Paolo Scerbo,Barbara Rossetti,Alessia Uglietti,Roberta Termini,Francesco Rucci,Andrea Gori,Daniela Mancusi
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179 Understanding Symptoms in RYR1-Related Myopathies: A Mixed-Methods Analysis Based on Participants’ Experience
Carlos Capella-Peris,Mary M. Cosgrove,Irene C. Chrismer,M. Sonia Razaqyar,Jeffrey S. Elliott,Anna Kuo,Magalie Emile-Backer,Katherine G. Meilleur
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180 Qualitative Findings on the Impact of Disease in Epstein–Barr Virus-Driven Post-Transplant Lymphoproliferative Disease Patients, as Measured by EQ-5D, SF-36, and the FACT-LYM
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181 ‘Mapping’ Health State Utility Values from Non-preference-Based Measures: A Systematic Literature Review in Rare Diseases
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182 Implementing Patient-Reported Outcome Measures in Outpatient Rehabilitation Settings: A Systematic Review of Facilitators and Barriers Using the Consolidated Framework for Implementation Research
Matthew S. Briggs,Katherine Kozak Rethman,Justin Crookes,Fern Cheek,Kristy Pottkotter,Shana McGrath,John DeWitt,Lindsay E. Harmon-Matthews,Catherine C. Quatman-Yates
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183 Structural validity of the Finnish Manchester-Oxford Foot Questionnaire (MOXFQ) using the Rasch model
Ville T. Ponkilainen,Mikko Miettinen,Henrik Sandelin,Jan Lindahl,Arja H. Häkkinen,Alar Toom,Tomi Tillgren,Outi Ilves,Antti O. Latvala,Katri Ahonen,Timo Sirola,Mika Sampo,Olli Väistö,Jussi P. Repo
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184 A randomized controlled trial on irrigation of open appendectomy wound with gentamicin- saline solution versus saline solution for prevention of surgical site infection
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185 Timing of electronic reminders did not improve trial participant questionnaire response: a randomized trial and meta-analyses
Prasanna Partha Sarathy,Lucksy Kottam,Adwoa Parker,Stephen Brealey,Elizabeth Coleman,Ada Keding,Alex Mitchell,Matthew Northgraves,David Torgerson,Amar Rangan
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186 Health items with a novel patient-centered approach provided information for preference-based transplant outcome measure
Ahmad Shahabeddin Parizi,Paul F.M. Krabbe,Erik Buskens,Wim van der Bij,Hans Blokzijl,Vera Hanewinkel,Coby Annema,Stephan J.L. Bakker,Karin M. Vermeulen
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187 Information Technology–Assisted Screening for Gonorrhea and Chlamydia in a Pediatric Emergency Department
Jennifer L. Reed,Judith W. Dexheimer,Andrea M. Kachelmeyer,Maurizio Macaluso,Evaline A. Alessandrini,Jessica A. Kahn
Journal of Adolescent Health. 2020;
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188 Do Knee Osteoarthritis Patterns Affect Patient-Reported Outcomes in Total Knee Arthroplasty? Results from an International Multicenter Prospective Study with 3-Year Follow-Up
Veronique Vestergaard,Yhan E. Colon Iban,Andreas Kappel,Christopher M. Melnic,Hany Bedair,James I. Huddleston,Charles R. Bragdon,Henrik Malchau,Anders Troelsen
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189 Preoperative psychometric properties of visual analog scale asessments for function, pain, and strength compared with legacy upper extremity outcome measures in glenohumeral osteoarthritis
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190 Outcome reporting patterns in total knee arthroplasty: A systematic review
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191 Patient-reported cognitive complaints in older adults with gastrointestinal malignancies at diagnosis– Results from the Cancer & Aging Resilience Evaluation (CARE) study
Nabiel Mir,Paul MacLennan,Mustafa Al-Obaidi,Donna Murdaugh,Kelly M. Kenzik,Andrew McDonald,Noha Sharafeldin,Crystal Young-Smith,Ravi Paluri,Olumide Gbolahan,Lakshmin Nandagopal,Smita Bhatia,Grant R. Williams
Journal of Geriatric Oncology. 2020;
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192 Mid-term clinical and functional outcomes of distal biceps tendon repair: A comparative study of two surgical fixation techniques
Emma Poyser,Wahid Abdul,Hemang Mehta
Journal of Orthopaedics, Trauma and Rehabilitation. 2020; 27(1): 47
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193 Assessment of quality of care of patients with ST-segment elevation myocardial infarction
Bartosz Hudzik,Andrzej Budaj,Marek Gierlotka,Adam Witkowski,Wojciech Wojakowski,Tomasz Zdrojewski,Robert Gil,Jacek Legutko,Stanislaw Bartus,Pawel Buszman,Dariusz Dudek,Mariusz Gasior
European Heart Journal: Acute Cardiovascular Care. 2020; 9(8): 893
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194 Do individual versus illness belief schema differ in the prediction of post-stroke recovery?
Navneet Aujla,Marion Walker,Nikola Sprigg,Kavita Vedhara
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195 How patient-generated health data and patient-reported outcomes affect patient–clinician relationships: A systematic review
Ross J Lordon,Sean P Mikles,Laura Kneale,Heather L Evans,Sean A Munson,Uba Backonja,William B Lober
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196 Performance of Pediatric PROMIS CATs in Children With Upper Extremity Fractures
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HAND. 2020; 15(2): 194
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197 Valuable, but not useful: Barriers to use in implementation of patient reported outcomes
Zoe Pruitt,Laura C. Schubel,Ram Dixit,Robin Littlejohn,Chun-Ju Hsiao,Deliya Wesley
Proceedings of the International Symposium on Human Factors and Ergonomics in Health Care. 2020; 9(1): 277
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198 Burden of migraine among Japanese patients: a cross-sectional National Health and Wellness Survey
Shoji Kikui,Yirong Chen,Hiroshi Todaka,Keiko Asao,Kenji Adachi,Takao Takeshima
The Journal of Headache and Pain. 2020; 21(1)
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199 The effect of exercise-based interventions on health-related quality of life and physical function in older patients with cancer receiving medical antineoplastic treatments: a systematic review
Marta Kramer Mikkelsen,Carsten Bogh Juhl,Cecilia Margareta Lund,Mary Jarden,Anders Vinther,Dorte Lisbet Nielsen
European Review of Aging and Physical Activity. 2020; 17(1)
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200 A qualitative exploration of what works for migrant adolescents in transcultural psychotherapy: perceptions of adolescents, their parents, and their therapists
Léa Grau,Emilie Carretier,Marie-Rose Moro,Anne Revah-Levy,Jordan Sibeoni,Jonathan Lachal
BMC Psychiatry. 2020; 20(1)
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201 Instruments to Evaluate Self-Management of Radiation Dermatitis in Patients With Breast Cancer
Michelle Pembroke,Lynne Nemeth
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202 Patient-reported outcome measures for retinoblastoma: a scoping review
Ana Janic,Sylvie Bowden,Sarah Levy,Jennifer Stinson,Helen Dimaras
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203 Use of the patient-reported outcomes measurement information system (PROMIS®) to assess late-onset Pompe disease severity
Melodi Harfouche,Priya S. Kishnani,Eva Krusinska,Jamie Gault,Sheela Sitaraman,Amanda Sowinski,Irina Katz,Stephanie Austin,Margi Goldstein,Andrew E. Mulberg
Journal of Patient-Reported Outcomes. 2020; 4(1)
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204 The development of PROmunication: a training-tool for clinicians using patient-reported outcomes to promote patient-centred communication in clinical cancer settings
Pernille C. Skovlund,Sissel Ravn,Lene Seibaek,Henriette Vind Thaysen,Kirsten Lomborg,Berit Kjærside Nielsen
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205 A call for consensus in defining efficacy in clinical trials for opioid addiction: combined results from a systematic review and qualitative study in patients receiving pharmacological assisted therapy for opioid use disorder
Brittany B. Dennis,Nitika Sanger,Monica Bawor,Leen Naji,Carolyn Plater,Andrew Worster,Julia Woo,Anuja Bhalerao,Natasha Baptist-Mohseni,Alannah Hillmer,Danielle Rice,Kim Corace,Brian Hutton,Peter Tugwell,Lehana Thabane,Zainab Samaan
Trials. 2020; 21(1)
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206 Assessing effectiveness and implementation of a perioperative enhanced recovery protocol for children undergoing surgery: study protocol for a prospective, stepped-wedge, cluster, randomized, controlled clinical trial
Mehul V. Raval,Erin Wymore,Martha-Conley E. Ingram,Yao Tian,Julie K. Johnson,Jane L. Holl
Trials. 2020; 21(1)
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207 Psychosocial Aspects of Delivering Cancer Care to Indigenous People: An Overview
Gail Garvey,Joan Cunningham,Carole Mayer,Angeline Letendre,Joanne Shaw,Kate Anderson,Brian Kelly
JCO Global Oncology. 2020; (6): 148
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208 Implementation of Electronic Patient-Reported Outcomes in Routine Cancer Care at an Academic Center: Identifying Opportunities and Challenges
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JCO Oncology Practice. 2020; 16(11): e1255
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209 A Practical Guide for Item Generation in Measure Development: Insights From the Development of a Patient-Reported Experience Measure of Compassion
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Journal of Nursing Measurement. 2020; 28(1): 138
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210 Outcome Reporting Patterns in Total Hip Arthroplasty
Sravya P. Vajapey,Jesse Morris,Dan Li,Nicholas G. Greco,Mengnai Li,Andrew I. Spitzer
JBJS Reviews. 2020; 8(4): e0197
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211 Tobacco smoking and health-related quality of life among university students: Mediating effect of depression
Marija Milic,Tatjana Gazibara,Tatjana Pekmezovic,Darija Kisic Tepavcevic,Gorica Maric,Aleksandra Popovic,Jasmina Stevanovic,Karamchand Hukumchand Patil,Hagai Levine,Stanton A. Glantz
PLOS ONE. 2020; 15(1): e0227042
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212 Adapting cognitive diagnosis computerized adaptive testing item selection rules to traditional item response theory
Miguel A. Sorrel,Juan R. Barrada,Jimmy de la Torre,Francisco José Abad,Timo Gnambs
PLOS ONE. 2020; 15(1): e0227196
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213 Health-Related Quality of Life
Beverley Kok,Reid Whitlock,Thomas Ferguson,Robert James Bailey,Kelly Warren Burak,Jan Kowalczewski,Navdeep Tangri,Puneeta Tandon
The American Journal of Gastroenterology. 2020; 115(4): 575
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214 Management of The Elderly Cancer Patients Complexity: The Radiation Oncology Potential
Giuseppe Colloca,Luca Tagliaferri,Beatrice Di Capua,Maria Antonietta Gambacorta,Vito Lanzotti,Andrea Bellieni,Silvio Monfardini,Lodovico Balducci,Roberto Bernabei,William C Cho,Vincenzo Valentini
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215

Development and Validation of the Chinese Version of the Quality of Recovery-40 Questionnaire
Yeyang Chen,Junfu Wang,Siyu Liu,Weikun Lai,Jinlu Liu,Zhen Wang,Bopei Li,Yuantian Mao,Ye Wang,Guofei Deng,Junqiang Chen
Therapeutics and Clinical Risk Management. 2020; Volume 16: 1165
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216

Vagal Nerve Stimulation in Epilepsy: Experiences of Participants with Cognitive Deficits
Eva Pipan,Alexandros Apostolou,Maria Bograkou,Petra Brooks,Patrick Vigren,Helena Gauffin
Neuropsychiatric Disease and Treatment. 2020; Volume 16: 1181
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217

Clinically Meaningful Difference for the Infant Gastroesophageal Questionnaire Revised version (I-GERQ-R): A Quantitative Synthesis
Adam B Smith,Neil Fawkes,Helen Kotze,Victoria Hodgkinson,Cathal Coyle
Patient Related Outcome Measures. 2020; Volume 11: 87
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218 Acceptance and Commitment Therapy Delivered via a Mobile Phone Messaging Robot Decreases Postoperative Opioid Utilization in Orthopaedic Trauma Patients: Randomized Control Trial (Preprint)
Chris A. Anthony,Edward Octavio Rojas,Valerie Keffala,Natalie Ann Glass,Apurva S. Shah,Benjamin J. Miller,Matthew Hogue,Michael C. Willey,Matthew Karam,John Lawrence Marsh
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219 Sustained Impact of Real-time Continuous Glucose Monitoring in Adults With Type 1 Diabetes on Insulin Pump Therapy: Results After the 24-Month RESCUE Study
Sara Charleer,Christophe De Block,Frank Nobels,Régis P. Radermecker,Ine Lowyck,Annelies Mullens,Denis Scarnière,Katrien Spincemaille,Marie Strivay,Eric Weber,Youri Taes,Chris Vercammen,Bart Keymeulen,Chantal Mathieu,Pieter Gillard
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220 Multimodal outcome assessment after surgery for brainstem cavernous malformations
Philipp Dammann, Annika Herten, Alejandro N. Santos, Laurèl Rauschenbach, Bixia Chen, Marvin Darkwah Oppong, Börge Schmidt, Michael Forsting, Christoph Kleinschnitz, Ulrich Sure
Journal of Neurosurgery. 2020; : 1
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221 Patient-reported outcomes in chronic kidney disease
I. A. Vasilieva,V. A. Dobronravov
Nephrology (Saint-Petersburg). 2020; 24(6): 9
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222 Measuring Outcomes in Psoriatic Arthritis: Comparing Routine Assessment of Patient Index Data and Psoriatic Arthritis Impact of Disease
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The Journal of Rheumatology. 2020; 47(10): 1496
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223 Determination of Normative Kerlan-Jobe Orthopaedic Clinic Scores in College and Junior Tennis Players
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224 Quality of life analysis after Whipple procedure. Retrospective cohort study
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Colombian Journal of Anesthesiology. 2020; 49(2)
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225 A Global Review on the Utility of Genetic Testing for Familial Hypercholesterolemia
Rachele M. Hendricks-Sturrup,Jodi Clark-LoCascio,Christine Y. Lu
Journal of Personalized Medicine. 2020; 10(2): 23
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226 Patient Participation With a Mobile Phone Application for Objective Activity Assessment Before and After Spinal Fusion
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227 Using Patient-Reported Outcome Measurement Information System Computer Adaptive Testing Domains to Investigate the Impact of Obesity on Physical Function, Pain Interference, and Mental Health in Sports Medicine Patients
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Journal of Obesity & Metabolic Syndrome. 2019; 28(4): 246
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228 Quality of life in patients with Parkinson´s disease in the Slovak Republic
Vladimír Meluš,Nikoleta Poliaková,Ján Bielik,Simona Lipovská
Neurologie pro praxi. 2019; 20(3): 219
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229 Minimal Associations Between Clinical Data and Childrenæs Self-Reported Health-Related Quality of Life in Children With Chronic Conditions—A Cross-Sectional Study
Kathrin I. Fischer,Dana Barthel,Christiane Otto,Ulrike Ravens-Sieberer,Ute Thyen,Marcus Klein,Otto Walter,Matthias Rose,Sandra Nolte
Frontiers in Pediatrics. 2019; 7
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230 Characteristics of Future Models of Integrated Outpatient Care
Alan Leviton,Julia Oppenheimer,Madeline Chiujdea,Annalee Antonetty,Oluwafemi William Ojo,Stephanie Garcia,Sarah Weas,Eric Fleegler,Eugenia Chan,Tobias Loddenkemper
Healthcare. 2019; 7(2): 65
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231 The Relationship Between Patient Reported Dysphagia Symptom Severity and Swallowing Related Quality of Life in Patients with Neurological Disorders
Selen Serel Arslan,Numan Demir,A. Ayse Karaduman
Clinical and Experimental Health Sciences. 2019; 9(1): 54
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232 Is a Single Preliminary Session of In-office Bleaching Beneficial for the Effectiveness of At-home Tooth Bleaching? A Randomized Controlled Clinical Trial
SC Vaez,ACC Correia,TR Santana,MLC Santana,AC Peixoto,PC Leal,AL Faria-e-Silva
Operative Dentistry. 2019; 44(4): E180
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233 Health Data Processes: A Framework for Analyzing and Discussing Efficient Use and Reuse of Health Data With a Focus on Patient-Reported Outcome Measures
Niels Henrik Ingvar Hjollund,José Maria Valderas,Derek Kyte,Melanie Jane Calvert
Journal of Medical Internet Research. 2019; 21(5): e12412
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234 Landscape of Participant-centric Initiatives (PCIs) for Medical Research in the US, the UK, and Japan: A Scoping Review (Preprint)
Nao Hamakawa,Rumiko Nakano,Atsushi Kogetsu,Victoria Coathup,Jane Kaye,Beverley Anne Yamamoto,Kazuto Kato
Journal of Medical Internet Research. 2019;
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235 The validity, reliability and minimal clinically important difference of the patient specific functional scale in snake envenomation
Charles J. Gerardo,Joao R. N. Vissoci,Leonardo P. de Oliveira,Victoria E. Anderson,Eugenia Quackenbush,Brandon Lewis,S. Rutherfoord Rose,Spencer Greene,Eric A. Toschlog,Nathan P. Charlton,Michael E. Mullins,Richard Schwartz,David Denning,Kapil Sharma,Kurt Kleinschmidt,Sean P. Bush,Nicklaus P. Brandehoff,Eric J. Lavonas,Chung-Ying Lin
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236 Patients With Nonalcoholic Steatohepatitis Experience Severe Impairment of Health-Related Quality of Life
Zobair M. Younossi,Maria Stepanova,Eric J. Lawitz,K. Rajender Reddy,Vincent Wai-Sun Wong,Alessandra Mangia,Andrew J. Muir,Ira Jacobson,C. Stephen Djedjos,Anuj Gaggar,Robert P. Myers,Issah Younossi,Fatema Nader,Andrei Racila
The American Journal of Gastroenterology. 2019; 114(10): 1636
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237 Electronic Patient-Reported Outcome Collection Systems in Orthopaedic Clinical Practice
Vincent A. Lizzio,Mihir S. Dekhne,Eric C. Makhni
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238 Patients’ perspectives on acromegaly diagnostic delay: a qualitative study
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European Journal of Endocrinology. 2019; 180(6): 339
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239 Structured literature review of patient-reported outcome (PRO) instruments in adult tonsillectomy or tonsillotomy
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240 Reducing shoulder complaints in employees with high occupational shoulder exposures: study protocol for a cluster-randomised controlled study (The Shoulder-Café Study)
Jeanette Trøstrup,Lone Ramer Mikkelsen,Poul Frost,Annett Dalbøge,Mette Terp Høybye,Sven Dalgas Casper,Lene Bastrup Jørgensen,Thomas Martin Klebe,Susanne Wulff Svendsen
Trials. 2019; 20(1)
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241 Cross-cultural adaptation and psychometric properties of the Dutch version of the Hand Function Sort in patients with complaints of hand and/or wrist
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242 Development of a patient reported outcome measures for measuring the impact of visual impairment following stroke
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243 The power of the group: comparison of interviews and group concept mapping for identifying patient-important outcomes of care
Kristin L. Rising,Marianna LaNoue,Alexzandra T. Gentsch,Amanda M. B. Doty,Amy Cunningham,Brendan G. Carr,Judd E. Hollander,Lori Latimer,Larry Loebell,Gail Weingarten,Neva White,Geoffrey Mills
BMC Medical Research Methodology. 2019; 19(1)
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244 Minimally Important Difference in the Foot and Ankle Outcome Score Among Patients Undergoing Hallux Valgus Surgery
Sameer Desai,Alexander C. Peterson,Kevin Wing,Alastair Younger,Trafford Crump,Guiping Liu,Andrea Veljkovic,Murray Penner,Jason M. Sutherland
Foot & Ankle International. 2019; 40(6): 694
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245 Researching the Appropriateness of Care in the Complementary and Integrative Health Professions Part 3: Designing Instruments With Patient Input
Margaret D. Whitley,Ian D. Coulter,Ryan W. Gery,Ron D. Hays,Cathy Sherbourne,Patricia M. Herman,Lara G. Hilton
Journal of Manipulative and Physiological Therapeutics. 2019;
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246 Single Assessment Numeric Evaluation (SANE) is a reliable metric to measure clinically significant improvements following shoulder arthroplasty
Anirudh K. Gowd,Michael D. Charles,Joseph N. Liu,Simon P. Lalehzarian,Brandon C. Cabarcas,Brandon J. Manderle,Gregory P. Nicholson,Anthony A. Romeo,Nikhil N. Verma
Journal of Shoulder and Elbow Surgery. 2019;
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247 A systematic review of patient-reported outcome measures used in shoulder instability research
Joseph H. Whittle,Susan E. Peters,Silvia Manzanero,Phillip F. Duke
Journal of Shoulder and Elbow Surgery. 2019;
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248 Outcomes Following Replantation/Revascularization in the Hand
Hoyune E. Cho,Sandra V. Kotsis,Kevin C. Chung
Hand Clinics. 2019; 35(2): 207
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249 Systematic review of methodology used in clinical studies evaluating the benefits of proton beam therapy
Mercy Ofuya,Lucy McParland,Louise Murray,Sarah Brown,David Sebag-Montefiore,Emma Hall
Clinical and Translational Radiation Oncology. 2019;
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250 PROs in the wild: Assessing the validity of patient reported outcomes in an electronic registry
Federico Cabitza,Linda Greta Dui,Giuseppe Banfi
Computer Methods and Programs in Biomedicine. 2019;
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251 Patient-Reported Satisfaction and Study Drug Discontinuation: Post-Hoc Analysis of Findings from ROCKET AF
Leo Ungar,Fatima Rodriguez,Anne S. Hellkamp,Richard C. Becker,Scott D. Berkowitz,Guenter Breithardt,Keith A. A. Fox,Werner Hacke,Jonathan L. Halperin,Graeme J. Hankey,Christopher C. Nessel,Daniel E. Singer,Manesh R. Patel,Jonathan P. Piccini,Kenneth W. Mahaffey
Cardiology and Therapy. 2019;
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252 The Patient Acceptable Symptom State for the Harris Hip Score Following Total Hip Arthroplasty Validated thresholds at 3 months, 1, 3, 5, and 7 years follow-up
Vincent Galea,Isabella Florissi,Pakdee Rojanasopondist,James W. Connelly,Lina Holm Ingelsrud,Charles Bragdon,Henrik Malchau,Anders Troelsen
The Journal of Arthroplasty. 2019;
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253 High-intensity interval training in the therapy and aftercare of cancer patients: a systematic review with meta-analysis
Hendrik Mugele,Nils Freitag,Jannik Wilhelmi,Yanxiang Yang,Sulin Cheng,Wilhelm Bloch,Moritz Schumann
Journal of Cancer Survivorship. 2019;
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254 Patient-reported outcomes of the relative severity of side effects from cancer radiotherapy
Patrick A. Williams,Shu Cao,Dongyun Yang,Richard L. Jennelle
Supportive Care in Cancer. 2019;
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255 Psychometric Validation of the Autism Impact Measure (AIM)
Richard Houghton,Brigitta Monz,Kiely Law,Georg Loss,Stephanie Le Scouiller,Frank de Vries,Tom Willgoss
Journal of Autism and Developmental Disorders. 2019;
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256 Why imaging data alone is not enough: AI-based integration of imaging, omics, and clinical data
Andreas Holzinger,Benjamin Haibe-Kains,Igor Jurisica
European Journal of Nuclear Medicine and Molecular Imaging. 2019;
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257 Health-related quality of life, psychosocial functioning, and unmet health needs in patients with sarcoma: A systematic review
Joshua McDonough,Jaklin Eliott,Susan Neuhaus,Jessica Reid,Phyllis Butow
Psycho-Oncology. 2019;
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258 Single-item discrimination of quality-of-life-altering dysphagia among 714 long-term oropharyngeal cancer survivors: Comparison of patient-reported outcome measures of swallowing
Stephen Grant,Mona Kamal,Abdallah S. R. Mohamed,Jhankruti Zaveri,Martha P. Barrow,G. Brandon Gunn,Stephen Y. Lai,Jan S. Lewin,David I. Rosenthal,Xin Shelley Wang,Clifton D. Fuller,Katherine A. Hutcheson
Cancer. 2019;
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259 Patient perspectives on the process and outcomes of psychiatric genetic counseling: An “Empowering Encounter ”
Alicia Semaka,Jehannine Austin
Journal of Genetic Counseling. 2019;
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260 Evaluation of Measurement Properties of Patient-Reported Outcome Measures After Rhinoplasty
Floris V. W. J. van Zijl,L. B. Mokkink,J. A. Haagsma,Frank R. Datema
JAMA Facial Plastic Surgery. 2019;
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261 Parent and child perception of quality of life in a randomized controlled peanut oral immunotherapy trial
Tonje Reier-Nilsen,Karin C. Lødrup Carlsen,Merethe Melbye Michelsen,Sebastian Drottning,Kai-Håkon Carlsen,Chi Zhang,Magnus P. Borres,Geir Håland
Pediatric Allergy and Immunology. 2019;
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262 Qualitative study of implementation of patient self-reported measures in a consultation-liaison psychiatry practice
Aaron Spaulding,Lisa Nordan,Lorrie Blanchfield,Gladys B. Asiedu,Jean Saltivan,Stacey Pecenka,Ryan Uitti,James Naessens,Shehzad Niazi
Journal of Evaluation in Clinical Practice. 2019;
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263 Correlation of Single Assessment Numerical Evaluation Score for Sport and Activities of Daily Living to Modified Harris Hip Score and Hip Outcome Score in Patients Undergoing Arthroscopic Hip Surgery
Brian C. Lau,Melissa Scribani,Tally Lassiter,Jocelyn Wittstein
The American Journal of Sports Medicine. 2019; 47(11): 2646
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264 Validation of a Quality of Life Instrument in Spanish Patients With Rheumatic Diseases
Leticia Leon,Luis Rodriguez-Rodriguez,Maria Dolores Aguilar,Juan Ángel Jover,Cristina Vadillo,Marta Redondo,Lydia Abasolo
JCR: Journal of Clinical Rheumatology. 2019; 25(2): 78
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265 An introduction to patient-reported outcome measures (PROMs) in trauma
Grace M. Turner,Anita Slade,Ameeta Retzer,Christel McMullan,Derek Kyte,Antonio Belli,Melanie Calvert
Journal of Trauma and Acute Care Surgery. 2019; 86(2): 314
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266 Exercise for Solid Organ Transplant Candidates and Recipients
Tania Janaudis-Ferreira,Sunita Mathur,Robin Deliva,Nancy Howes,Catherine Patterson,Agnès Räkel,Stephanie So,Lisa Wickerson,Michel White,Yaron Avitzur,Olwyn Johnston,Norine Heywood,Sunita Singh,Sandra Holdsworth
Transplantation. 2019; 103(9): e220
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267 A Case Management System for Integrating Patient-reported Outcome Assessment in Clinical Practice
David Zahrieh,Alex Alexander,Briant Fruth,Angelina D. Tan,Jennifer Le-Rademacher,Rahma Warsame,Katrina Croghan,Jeff A. Sloan
Medical Care. 2019; 57: S73
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268 Appearance in acne: an often-overlooked concept
M. Gabes
British Journal of Dermatology. 2019;
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269 Utilization of a Wide Array of Nonvalidated Outcome Scales in Pediatric Orthopaedic Publications
Walter H. Truong,Meghan J. Price,Kunal N. Agarwal,Joash R. Suryavanshi,Sahana Somasegar,Micha Thompson,Peter D. Fabricant,Emily R. Dodwell
Journal of Pediatric Orthopaedics. 2019; 39(2): e153
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270 A critical appraisal of vasomotor symptom assessment tools used in clinical trials evaluating hormone therapy compared to placebo
Marie K. Christakis,Donna M. Strobino,Wen Shen
Menopause. 2019; 26(11): 1334
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271 Recommendations for selection of self-report pain intensity measures in children and adolescents
Kathryn A. Birnie,Amos S. Hundert,Chitra Lalloo,Cynthia Nguyen,Jennifer N. Stinson
PAIN. 2019; 160(1): 5
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272 Chronic Condition Measurement Requires Engagement, Not Measurement Alone
Andrea M. Austin,Don Carmichael,Scott Berry,Wendolyn S. Gozansky,Eugene C. Nelson,Jonathan S. Skinner,Paul J. Barr
Journal of Ambulatory Care Management. 2019; 42(4): 295
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273 Comparison between an electronic version of the foot and ankle outcome score and the standard paper version
Jae Yong Park,Bom Soo Kim,Hyun June Lee,Yu Mi Kim,Hyong Nyun Kim,Hwa Jun Kang,Jae Ho Cho,SeongJu Choi,Youngrak Choi
Medicine. 2019; 98(40): e17440
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274 Prevalence and Associated Factors of Abdominal Pain and Disability at 1-Year Follow-up After an Attack of Acute Pancreatitis
Amir Gougol,Jorge D. Machicado,Bassem Matta,Pedram Paragomi,Ioannis Pothoulakis,Adam Slivka,David C. Whitcomb,Dhiraj Yadav,Georgios I. Papachristou
Pancreas. 2019; 48(10): 1348
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275 Future Approaches to Precision Oncology–Based Clinical Trials
Arjun Mittra,Jeffrey A. Moscow
The Cancer Journal. 2019; 25(4): 300
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276 Patient-reported outcome measures for acute and chronic pain
Esther Pogatzki-Zahn,Kathrin Schnabel,Ulrike Kaiser
Current Opinion in Anaesthesiology. 2019; 32(5): 616
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277 Quality of life outcomes in multiple myeloma patients: a summary of recent clinical trials
Massimo Martino,Marco Rossi,Anna Ferreri,Barbara Loteta,Antonella Morabito,Tiziana Moscato,Giuseppe Console,Vanessa Innao,Virginia Naso,Pasquale Fabio Provenzano,Anna Grazia Recchia,Massimo Gentile
Expert Review of Hematology. 2019; : 1
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278 Accelerating the Search for Interventions Aimed at Expanding the Health Span in Humans: The Role of Epidemiology
Anne B Newman,Stephen B Kritchevsky,Jack M Guralnik,Steven R Cummings,Marcel Salive,George A Kuchel,Jennifer Schrack,Martha Clare Morris,David Weir,Andrea Baccarelli,Joanne M Murabito,Yoav Ben-Shlomo,Mark A Espeland,James Kirkland,David Melzer,Luigi Ferrucci,David Le Couteur
The Journals of Gerontology: Series A. 2019;
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279 Patient-Reported Outcome Measures for Adults With Kidney Disease: Current Measures, Ongoing Initiatives, and Future Opportunities for Incorporation Into Patient-Centered Kidney Care
Devika Nair,F. Perry Wilson
American Journal of Kidney Diseases. 2019;
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280 Enhanced recovery after cardiac surgery: More than a buzzword
Alexander J. Gregory
Journal of Cardiothoracic and Vascular Anesthesia. 2018;
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281 Comparing patient-reported outcomes entered at home versus at hospital, and testing touch screens for initial recruitment to scientific trials in arthritis patients
AE Secher,B Glintborg,H Gudbergsen,NS Krogh,IJ Sørensen,DV Jensen,R Christensen,M Skougaard,PL Pedersen,ML Hetland
Scandinavian Journal of Rheumatology. 2018; : 1
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282 Approaches to rapid acting insulin intensification in patients with type 2 diabetes mellitus not achieving glycemic targets
Alexandra Migdal,Martin Abrahamson,Anne Peters,Nan Vint
Annals of Medicine. 2018; : 1
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283 Caring electronically for young outpatients who have epilepsy
Julia Oppenheimer,Alan Leviton,Madeline Chiujdea,Annalee Antonetty,Oluwafemi William Ojo,Stephanie Garcia,Sarah Weas,Eric W. Fleegler,Eugenia Chan,Tobias Loddenkemper
Epilepsy & Behavior. 2018;
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284 The relationship between patients’ illness beliefs and recovery after stroke
N. Aujla,M. Walker,K. Vedhara,N. Sprigg
Psychology, Health & Medicine. 2018; : 1
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285 Rasch analysis of the Lower Extremity Functional Scale for foot and ankle patients
Jussi P. Repo,Erkki J. Tukiainen,Risto P. Roine,Mika Sampo,Henrik Sandelin,Arja H. Häkkinen
Disability and Rehabilitation. 2018; : 1
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286 Determinants of patient satisfaction in outpatient musculoskeletal physiotherapy: a systematic, qualitative meta-summary, and meta-synthesis
Giacomo Rossettini,Teresa Maria Latini,Alvisa Palese,Susan M. Jack,Diego Ristori,Serena Gonzatto,Marco Testa
Disability and Rehabilitation. 2018; : 1
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287 The effects of multidisciplinary psychosocial interventions on adult cancer patients: a systematic review and meta-analysis
Hilde Tinderholt Myrhaug,Julia Aneth Mbalilaki,Nataskja-Elena Kersting Lie,Tone Hansen,Jan Egil Nordvik
Disability and Rehabilitation. 2018; : 1
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288 Characteristics and complexity of chronic pain patients referred to a community-based multi-disciplinary chronic pain clinic
C. May,V. Brcic,B. Lau
Canadian Journal of Pain. 2018;
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289 Addressing the quality of life needs of older patients with cancer: a SIOG consensus paper and practical guide
F Scotté,P Bossi,E Carola,T Cudennec,P Dielenseger,F Gomes,S Knox,F Strasser
Annals of Oncology. 2018; 29(8): 1718
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290 Functional Status Examination in Patients with Moderate to Severe Traumatic Brain Injuries
Joan Machamer,Nancy Temkin,Geoffrey Manley,Sureyya Dikmen
Journal of Neurotrauma. 2018;
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291 Severity classification of the quality of recovery-15 score—An observational study.
Jakob Kleif,Ismail Gögenur
Journal of Surgical Research. 2018; 225: 101
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292 French Patients with Hepatitis C Treated with Direct-Acting Antiviral Combinations: The Effect on Patient-Reported Outcomes
Patrice Cacoub,Marc Bourliere,Tarik Asselah,Victor De Ledinghen,Philippe Mathurin,Christophe Hézode,Linda Henry,Maria Stepanova,Zobair M. Younossi
Value in Health. 2018;
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293 Are Patient Self-Reported Outcome Measures Sensitive Enough to Be Used as End Points in Clinical Trials?
Lee Jones,David F. Garway-Heath,Augusto Azuara-Blanco,David P. Crabb,David F. Garway-Heath,David P. Crabb,Catey Bunce,Gerassimos Lascaratos,Francesca Amalfitano,Nitin Anand,Augusto Azuara-Blanco,Rupert R. Bourne,David C. Broadway,Ian A. Cunliffe,Jeremy P. Diamond,Scott G. Fraser,Tuan A. Ho,Keith R. Martin,Andrew I. McNaught,Anil Negi,Krishna Patel,Richard A. Russell,Ameet Shah,Paul G. Spry,Katsuyoshi Suzuki,Edward T. White,Richard P. Wormald,Wen Xing,Thierry G. Zeyen
Ophthalmology. 2018;
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294 Validity, Reliability, and Responsiveness of the Spanish Version of the OPTIMAL Instrument
Arrate Pinto-Carral,Tania Fernández-Villa,Andrew A. Guccione,Federico Montero Cuadrado,José Ma Cancela,Antonio José Molina
PM&R. 2018;
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295 Physical Symptom Burden and its Association with Distress, Anxiety and Depression in Breast Cancer
Daniel C. McFarland,Kelly M. Shaffer,Amy Tiersten,Jimmie Holland
Psychosomatics. 2018;
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296 Un réseau de pairs pour l’éducation thérapeutique des patients atteints de diabète de type 2 au Mali
Stéphane Besançon,Cynthia Fleury
Soins. 2018; 63(828): 55
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297 Cost and cost-effectiveness studies in urologic oncology using large administrative databases
Ye Wang,Matthew Mossanen,Steven L. Chang
Urologic Oncology: Seminars and Original Investigations. 2018;
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298 Key design and analysis principles for quality of life and patient-reported outcomes in clinical trials
Joseph M. Unger,Riha Vaidya,John L. Gore
Urologic Oncology: Seminars and Original Investigations. 2018;
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299 A Review of Validated Quality-of-Life Patient-Reported Outcome Measures in Pediatric Plastic Surgery
Janine M. Roller,Rebecca J. M. Courtemanche,Douglas J. Courtemanche
Plastic and Reconstructive Surgery. 2018; 142(5): 694e
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300 Quality of life on long-term parenteral nutrition
Yaron Avitzur,Mar Miserachs
Current Opinion in Organ Transplantation. 2018; : 1
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301 Measurement Properties of the Functional Rating Index
Zhongfei Bai,Tian Shu,Jiani Lu,Wenxin Niu
SPINE. 2018; 43(22): E1340
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302 Factors Associated With Health-Related Quality of Life in Patients With Open Fractures
Sheila Sprague,Brad A. Petrisor,Kyle J. Jeray,Paula McKay,Taryn Scott,Diane Heels-Ansdell,Emil H. Schemitsch,Susan Liew,Gordon H. Guyatt,Stephen D. Walter,Mohit Bhandari
Journal of Orthopaedic Trauma. 2018; 32(1): e5
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303 AOFAS Position Statement Regarding Patient-Reported Outcome Measures
Harold B. Kitaoka,James E. Meeker,Phinit Phisitkul,Samuel B. Adams,Jonathan R. Kaplan,Emilio Wagner
Foot & Ankle International. 2018; 39(12): 1389
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304 Predictive factors of satisfaction and quality of life after immediate breast reconstruction using the BREAST-Q©
Carmen Cereijo-Garea,Salvador Pita-Fernández,Benigno Acea-Nebril,Raquel Rey-Villar,Alejandra García-Novoa,Cristina Varela-Lamas,Sergio Builes-Ramirez,Teresa Seoane-Pillado,Vanesa Balboa-Barreiro
Journal of Clinical Nursing. 2018;
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305 Working and caring for a child with chronic illness: A review of current literature
A. M. Kish,P. A. Newcombe,D. M. Haslam
Child: Care, Health and Development. 2018;
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306 Implementing electronic patient-reported outcomes measurements: challenges and success factors
Lisa Nordan,Lorrie Blanchfield,Shehzad Niazi,Juliet Sattar,Courtney Elizabeth Coakes,Ryan Uitti,Michael Vizzini,James M Naessens,Aaron Spaulding
BMJ Quality & Safety. 2018; 27(10): 852
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307 HLA-DQ:gluten tetramer test in blood gives better detection of coeliac patients than biopsy after 14-day gluten challenge
Vikas K Sarna,Gry I Skodje,Henrik M Reims,Louise F Risnes,Shiva Dahal-Koirala,Ludvig M Sollid,Knut E A Lundin
Gut. 2018; 67(9): 1606
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308 Assessment of patient-reported outcomes after polytrauma: protocol for a systematic review
Irmela Gnass,Michaela Ritschel,Silke Andrich,Silke Kuske,Kai Moschinski,Annegret Herrmann-Frank,Maria-Inti Metzendorf,Sascha Flohé,Johannes Sturm,Joachim Windolf,Andrea Icks
BMJ Open. 2018; 8(3): e017571
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309 Psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire
Chatree Chai-Adisaksopha,Mark W Skinner,Randall Curtis,Neil Frick,Michael B Nichol,Declan Noone,Brian O’Mahony,David Page,Jeffrey Stonebraker,Lehana Thabane,Mark Crowther,Alfonso Iorio
BMJ Open. 2018; 8(8): e021900
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310 ‘Adding another spinning plate to an already busy life’.Benefits and risks in patient partner–researcher relationships: a qualitative study of patient partners’ experiences in a Canadian health research setting
Jenny Leese,Graham Macdonald,Sheila Kerr,Lianne Gulka,Alison M Hoens,Wendy Lum,Bao Chau Tran,Anne F Townsend,Linda C Li
BMJ Open. 2018; 8(8): e022154
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311 Genetic counselors as social and behavioral scientists in the era of precision medicine
Barbara B. Biesecker
American Journal of Medical Genetics Part C: Seminars in Medical Genetics. 2018; 178(1): 10
[Pubmed] | [DOI]
312 A beta-binomial mixed-effects model approach for analysing longitudinal discrete and bounded outcomes
Josu Najera-Zuloaga,Dae-Jin Lee,Inmaculada Arostegui
Biometrical Journal. 2018;
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313 Patient-reported health-related quality of life outcomes in supportive-care interventions for adults with brain tumors: A systematic review
Tonya M. Pan-Weisz,Maria Kryza-Lacombe,Jeffrey Burkeen,Jona Hattangadi-Gluth,Vanessa L. Malcarne,Carrie R. McDonald
Psycho-Oncology. 2018;
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314 Uterosacral vault suspension (USLS) at the time of hysterectomy: laparoscopic versus vaginal approach
Sara Houlihan,Shunaha Kim-Fine,Colin Birch,Selphee Tang,Erin A. Brennand
International Urogynecology Journal. 2018;
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315 Aktueller Stand der Lebensqualitätsmessung bei Patienten mit chronischer Otitis media und Schallleitungsschwerhörigkeit
S. Lailach,I. Baumann,T. Zahnert,M. Neudert
HNO. 2018;
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316 A review of preference-based measures for the assessment of quality of life in children and adolescents with cerebral palsy
Christine Mpundu-Kaambwa,Gang Chen,Elisabeth Huynh,Remo Russo,Julie Ratcliffe
Quality of Life Research. 2018;
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317 Primary dysmenorrhea with and without premenstrual syndrome: variation in quality of life over menstrual phases
Farideh Quick,Sakineh Mohammad-Alizadeh-Charandabi,Mojgan Mirghafourvand
Quality of Life Research. 2018;
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318 Validation of the Patient-Reported Outcomes Measurement Information System (PROMIS)-57 and -29 item short forms among kidney transplant recipients
Evan Tang,Oladapo Ekundayo,John Devin Peipert,Nathaniel Edwards,Aarushi Bansal,Candice Richardson,Susan J. Bartlett,Doris Howell,Madeline Li,David Cella,Marta Novak,Istvan Mucsi
Quality of Life Research. 2018;
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319 Radiological grading of osteoarthritis on Rosenberg view has a significant correlation with clinical outcomes after medial open-wedge high-tibial osteotomy
Kyung Wook Nha,Seung Min Oh,Yoon Won Ha,Manoj Kumar Patel,Ji Hyun Seo,Byung Hoon Lee
Knee Surgery, Sports Traumatology, Arthroscopy. 2018;
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320 Cognitive functioning and quality of life in patients with Hashimoto thyroiditis on long-term levothyroxine replacement
Marina Djurovic,Alberto M. Pereira,Johannes W. A. Smit,Olga Vasovic,Svetozar Damjanovic,Zvezdana Jemuovic,Dragan Pavlovic,Dragana Miljic,Sandra Pekic,Marko Stojanovic,Milika Asanin,Gordana Krljanac,Milan Petakov
Endocrine. 2018;
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321 Using Self-Reported Patient Experiences to Understand Patient Burden: Learnings from Digital Patient Communities in Ankylosing Spondylitis
Prashanth Sunkureddi,Dawn Gibson,Stephen Doogan,John Heid,Samir Benosman,Yujin Park
Advances in Therapy. 2018;
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322 Perspectives of Patients with Insulin-Treated Type 1 and Type 2 Diabetes on Hypoglycemia: Results of the HAT Observational Study in Central and Eastern European Countries
Martin Haluzik,Adam Kretowski,Krzysztof Strojek,Leszek Czupryniak,Andrej Janez,Peter Kempler,Michal Andel,Tsvetalina Tankova,Mihail Boyanov,Lea Smircic Duvnjak,Laszlo Madacsy,Iwona Tarnowska,Marcin Zychma,Nebojsa Lalic
Diabetes Therapy. 2018;
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323 Correlation of Patient-Reported Outcome Measurement Information System Physical Function Upper Extremity Computer Adaptive Testing, With the American Shoulder and Elbow Surgeons Shoulder Assessment Form and Simple Shoulder Test in Patients With Shoulder Pain
Chelsea E. Minoughan,Adam P. Schumaier,John L. Fritch,Brian M. Grawe
Arthroscopy: The Journal of Arthroscopic & Related Surgery. 2018;
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324 Chronic Anterior Uveitis in Children: Psychosocial Challenges for Patients and Their Families
Delana M. Parker,Sheila T. Angeles-Han,Annette L. Stanton,Gary N. Holland
American Journal of Ophthalmology. 2018;
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325 Psychometric evaluation of the Patient-Reported Outcomes Measurement Information System (PROMIS) Physical Function and Pain Interference Computer Adaptive Test for subacromial impingement syndrome
Benjamin Strong,Michael Maloney,Judith Baumhauer,Joseph Schaffer,Jeff R. Houck,Man Hung,Jerry Bounsanga,Maren W. Voss,Yushan Gu,Ilya Voloshin
Journal of Shoulder and Elbow Surgery. 2018;
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326 Translation and cultural adaptation of the Pediatric Eosinophilic Esophagitis Symptom Score (PEESS v2.0)
Maria Fernanda Oliveira Santos,Cristina Palmer Barros,Carlos Henrique Martins da Silva,Helena Borges Martins da Silva Paro
Jornal de Pediatria (Versão em Português). 2018; 94(6): 642
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327 Functional Impact of Congenital Hand Differences: Early Results From the Congenital Upper Limb Differences (CoULD) Registry
Donald S. Bae,Maria F. Canizares,Patricia E. Miller,Peter M. Waters,Charles A. Goldfarb
The Journal of Hand Surgery. 2018; 43(4): 321
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328 Variability of PROMIS Scores Across Hand Conditions
Casey M. Beleckas,William Gerull,Melissa Wright,Jason Guattery,Ryan P. Calfee
The Journal of Hand Surgery. 2018;
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329 Health-related quality of life, psychological distress, and symptom burden in an Asian population of outpatients with atrial fibrillation
Hui Ching Tan,Karen Wei Ling Koh,Vivien Xi Wu,Toon Wei Lim,Wenru Wang
Heart & Lung. 2018;
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330 Evaluating test-retest reliability in patient-reported outcome measures for older people: A systematic review
Myung Sook Park,Kyung Ja Kang,Sun Joo Jang,Joo Yun Lee,Sun Ju Chang
International Journal of Nursing Studies. 2018; 79: 58
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331 Standardization of immunotherapy adverse events in patient information leaflets and development of an interface terminology for outpatients’ monitoring
E.M. Zini,G. Lanzola,S. Quaglini,R. Cornet
Journal of Biomedical Informatics. 2018; 77: 133
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332 Patient-reported improvements of pain, disability and health-related quality of life following chiropractic care for back pain – A national observational study in Sweden
F. Gedin,V. Dansk,A.-C. Egmar,T. Sundberg,K. Burström
Journal of Bodywork and Movement Therapies. 2018;
[Pubmed] | [DOI]
333 A Pilot Observational Study of Hypoglycemia: Patient Reporting Using a Web-Based Portal Compared to Paper Surveys
Kalyani Murthy,Hannah Caldwell,Mary Beth Hodge,Leigh M. Taylor,Violeta Ristic,Neil Minkoff,Josephine M. Norquist
Journal of Diabetes Science and Technology. 2018; 12(2): 543
[Pubmed] | [DOI]
334 Patient-reported outcome measures used in patients with primary sclerosing cholangitis: a systematic review
Fatima Isa,Grace M. Turner,Geetinder Kaur,Derek Kyte,Anita Slade,Tanya Pankhurst,Larissa Kerecuk,Thomas Keeley,James Ferguson,Melanie Calvert
Health and Quality of Life Outcomes. 2018; 16(1)
[Pubmed] | [DOI]
335 Valuing health-related quality of life: systematic variation in health perception
Manuel Huber,Martin Vogelmann,Reiner Leidl
Health and Quality of Life Outcomes. 2018; 16(1)
[Pubmed] | [DOI]
336 Prospective multicentre cohort study of patient-reported outcomes and complications following major abdominal neoplastic surgery (PATRONUS) – study protocol for a CHIR-Net student-initiated German medical audit study (CHIR-Net SIGMA study)
Christoph A. Fink,Mirco Friedrich,Pia-Elena Frey,Lukas Rädeker,Alexander Leuck,Thomas Bruckner,Manuel Feisst,Solveig Tenckhoff,Christina Klose,Colette Dörr-Harim,Jens Neudecker,André L. Mihaljevic
BMC Surgery. 2018; 18(1)
[Pubmed] | [DOI]
337 Patient reported outcome measures in rare diseases: a narrative review
Anita Slade,Fatima Isa,Derek Kyte,Tanya Pankhurst,Larissa Kerecuk,James Ferguson,Graham Lipkin,Melanie Calvert
Orphanet Journal of Rare Diseases. 2018; 13(1)
[Pubmed] | [DOI]
338 A preliminary investigation examining patient reported outcome measures for low back pain and utilisation amongst chiropractors in Australia: facilitators and barriers to clinical implementation
Natalie Clohesy,Anthony Schneiders
Chiropractic & Manual Therapies. 2018; 26(1)
[Pubmed] | [DOI]
339 Patient-reported outcomes associated with different restorative techniques in pediatric dentistry: A systematic review and MTC meta-analysis
Nathalia Miranda Ladewig,Tamara Kerber Tedesco,Thaís Gimenez,Mariana Minatel Braga,Daniela Prócida Raggio,Nagendra Kumar Kaushik
PLOS ONE. 2018; 13(12): e0208437
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340 The efficacy of complementary therapy for patients receiving palliative cancer care
SH Cedar,Melanie White,Anita Atwal
International Journal of Palliative Nursing. 2018; 24(3): 146
[Pubmed] | [DOI]
341 Wound irrigation does not affect health-related quality of life after open fractures: results of a randomized controlled trial
S. Sprague,B. Petrisor,K. Jeray,P. McKay,D. Heels-Ansdell,E. Schemitsch,S. Liew,G. Guyatt,S. D. Walter,M. Bhandari
The Bone & Joint Journal. 2018; 100-B(1): 88
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342 Factors associated with health-related quality of life, hip function, and health utility after operative management of femoral neck fractures
S. Sprague,M. Bhandari,M. J. Heetveld,S. Liew,T. Scott,S. Bzovsky,D. Heels-Ansdell,Q. Zhou,M. Swiontkowski,E. H. Schemitsch
The Bone & Joint Journal. 2018; 100-B(3): 361
[Pubmed] | [DOI]
343 An observational study to assess the outcomes of treatment of patients with stable angina after planned percutaneous coronary intervention: baseline patient characteristics
L. G. Ratova,E. N. Parizhskaya,K. A. Kovaleva,A. O. Nedoshivin,O. D. Nemyatykh,V. V. Pulit,A. O. Konradi
Russian Journal of Cardiology. 2018; (12): 52
[Pubmed] | [DOI]
344 Measurement Properties of Patient-Reported Outcome Measures Used in Patients Undergoing Total Hip Arthroplasty
Joel J. Gagnier,Hsiaomin Huang,Megan Mullins,Danica Marinac-Dabic,Anna Ghambaryan,Benjamin Eloff,Faisal Mirza,Manuel Bayona
JBJS Reviews. 2018; 6(1): e2
[Pubmed] | [DOI]
345 Healthcare in the pocket: A qualitative analysis of patients? perspectives of an mHealth application to foster power in everyday living with schizophrenia (Preprint)
Malene Terp,Rikke Jørgensen,Birgitte Schantz Laursen,Jan Mainz,Charlotte D. Bjørnes
JMIR Mental Health. 2018;
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346 Patient-Reported Outcomes in Patients with Chronic Kidney Disease and Kidney Transplant—Part 1
Evan Tang,Aarushi Bansal,Marta Novak,Istvan Mucsi
Frontiers in Medicine. 2018; 4
[Pubmed] | [DOI]
347 Quality of Life Assessment in Multiple Sclerosis: Different Perception between Patients and Neurologists
Maria C. Ysrraelit,Marcela P. Fiol,Maria I. Gaitán,Jorge Correale
Frontiers in Neurology. 2018; 8
[Pubmed] | [DOI]
348 The Effect of Pet Therapy and Artist Interactions on Quality of Life in Brain Tumor Patients: A Cross-Section of Art and Medicine in Dialog
Stefan Petranek,Jennifer Pencek,Mahua Dey
Behavioral Sciences. 2018; 8(5): 43
[Pubmed] | [DOI]
349 Quality of Life and Disability in Patients Candidate for Lumbar Spinal Fusion Surgery
Rahim Roeintan,Ahmadreza Khoshroo,Alireza Khoshnevisan,Alireza Arefidoust,Hamid Reza Rasouli
Trauma Monthly. 2018; In Press(In Press)
[Pubmed] | [DOI]
350 Improving Outcomes in Patients with CRC: The Role of Patient Reported Outcomes—An ESDO Report
Eric Van Cutsem,Aimery De Gramont,Geoffrey Henning,Philippe Rougier,Franck Bonnetain,Thomas Seufferlein
Cancers. 2017; 9(6): 59
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351 Association Between the Single Assessment Numeric Evaluation and the Western Ontario and McMaster Universities Osteoarthritis Index
Brian Pietrosimone,Brittney A. Luc,Austin Duncan,Susan A. Saliba,Joseph M. Hart,Christopher D. Ingersoll
Journal of Athletic Training. 2017; 52(6): 526
[Pubmed] | [DOI]
352 The assessment of patient clinical outcome: A literature discussion
MouæathA Hourani,NidalM Turab,QusaiY Shambour
Annals of Tropical Medicine and Public Health. 2017; 10(2): 321
[Pubmed] | [DOI]
353 Patient-Reported Outcomes of Chemotherapy Involving Non-Small Cell Lung Cancer: Evaluation by Questionnaires of Quality of Life Regarding Anti-Aging and Anti-Cancer Drugs
Takanori Ayabe,Masaki Tomita,Takashi Asada,Kazuyo Tsuchiya,Manabu Nemoto,Kunihide Nakamura
Advances in Lung Cancer. 2017; 06(02): 13
[Pubmed] | [DOI]
354 The emerging role of anamorelin hydrochloride in the management of patients with cancer anorexia-cachexia
David C Currow,Richard JE Skipworth
Future Oncology. 2017;
[Pubmed] | [DOI]
355 Electronic patient-reported outcomes: a revolutionary strategy in cancer care
Roland Eid,Fady GH Haddad,Hampig Raphael Kourie,Joseph Kattan
Future Oncology. 2017;
[Pubmed] | [DOI]
356 Electronic-Based Patient-Reported Outcomes: Willingness, Needs, and Barriers in Adjuvant and Metastatic Breast Cancer Patients
Andreas D Hartkopf,Joachim Graf,Elisabeth Simoes,Lucia Keilmann,Nina Sickenberger,Paul Gass,Diethelm Wallwiener,Lina Matthies,Florin-Andrei Taran,Michael P Lux,Stephanie Wallwiener,Eric Belleville,Christof Sohn,Peter A Fasching,Andreas Schneeweiss,Sara Y Brucker,Markus Wallwiener
JMIR Cancer. 2017; 3(2): e11
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357 Investigating Patient Reported Outcomes and Experience for Scarf Akin Osteotomy Using Proms2.0
Karam Ahmad
MOJ Orthopedics & Rheumatology. 2017; 8(2)
[Pubmed] | [DOI]
358 The Methods for Foot Function Index and Foot and Ankle Outcome Score Measurement: A Comparison between Paper-and-Pencil Method and Electronic Method
Ji-Beom Kim,Min-Soo Kwon,Jung-Gon Kim,Young Yi,Woo-Chun Lee,Jeong-Ku Ha,Suk-Hwan Jang
Journal of Korean Foot and Ankle Society. 2017; 21(1): 33
[Pubmed] | [DOI]
359 Health-Related Quality of Life in Primary Care: Which Aspects Matter in Multimorbid Patients with Type 2 Diabetes Mellitus in a Community Setting?
Martina Kamradt,Johannes Krisam,Marion Kiel,Markus Qreini,Werner Besier,Joachim Szecsenyi,Dominik Ose,Iratxe Puebla
PLOS ONE. 2017; 12(1): e0170883
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360 Are community-based nurse-led self-management support interventions effective in chronic patients? Results of a systematic review and meta-analysis
Azzurra Massimi,Corrado De Vito,Ilaria Brufola,Alice Corsaro,Carolina Marzuillo,Giuseppe Migliara,Maria Luisa Rega,Walter Ricciardi,Paolo Villari,Gianfranco Damiani,Sari Helena Räisänen
PLOS ONE. 2017; 12(3): e0173617
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361 Decreased health-related quality of life in angiodysplasia patients: A cross-sectional cohort
Karina V. Grooteman,Mijntje Matheeuwsen,Erwin J. M. van Geenen,Joost P. H. Drenth,John Green
PLOS ONE. 2017; 12(5): e0177522
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362 Patient reported outcomes – experiences with implementation in a University Health Care setting
Joshua Biber,Dominik Ose,Jenny Reese,Anna Gardiner,Julio Facelli,Joshua Spuhl,Darrel Brodke,Vivian S. Lee,Rachel Hess,Howard Weeks
Journal of Patient-Reported Outcomes. 2017; 2(1)
[Pubmed] | [DOI]
363 Correlation between subjective and objective hearing tests after unilateral and bilateral cochlear implantation
Geerte G. J. Ramakers,Yvette E. Smulders,Alice van Zon,Gijsbert A. Van Zanten,Wilko Grolman,Inge Stegeman
BMC Ear, Nose and Throat Disorders. 2017; 17(1)
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364 Integrative health care – What are the relevant health outcomes from a practice perspective? A survey
Ania Kania-Richmond,Amy Metcalfe
BMC Complementary and Alternative Medicine. 2017; 17(1)
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365 The effects of exercise on pain, fatigue, insomnia, and health perceptions in patients with operable advanced stage rectal cancer prior to surgery: a pilot trial
Jennifer Brunet,Shaunna Burke,Michael P.W. Grocott,Malcolm A. West,Sandy Jack
BMC Cancer. 2017; 17(1)
[Pubmed] | [DOI]
366 Greater Efficacy with Secukinumab Treatment is Associated with Greater Psoriasis Symptom Relief: Results from Secukinumab Clinical Trial Data
Alice B. Gottlieb,Bruce Strober,Mark Lebwohl,Roland Kaufmann,David Pariser,Redzinaldas Narbutas,Judit Nyirady,Yang Zhao,Vivian Herrera,Lori McLeod,Dawn Odom,Boni E. Elewski
Journal of Psoriasis and Psoriatic Arthritis. 2017; 2(2): 73
[Pubmed] | [DOI]
367 Randomized Controlled Trials Evaluating Patient-Reported Outcomes after Cholecystectomy: A Systematic Review
Krislynn M. Mueck,Deepa V. Cherla,Amy Taylor,Tien C. Ko,Mike K. Liang,Lillian S. Kao
Journal of the American College of Surgeons. 2017;
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368 Are validated patient-reported outcomes used on children in pediatric otolaryngology? A systematic review
Kevin Wong,Jacquelyn Piraquive,Chelsea A. Troiano,Anita Sulibhavi,Kenneth M. Grundfast,Jessica R. Levi
International Journal of Pediatric Otorhinolaryngology. 2017;
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369 Translation and cultural adaptation of the Pediatric Eosinophilic Esophagitis Symptom Score (PEESS v2.0)
Maria Fernanda Oliveira Santos,Cristina Palmer Barros,Carlos Henrique Martins da Silva,Helena Borges Martins da Silva Paro
Jornal de Pediatria. 2017;
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370 Correlation of PROMIS Physical Function Upper Extremity Computer Adaptive Test with American Shoulder and Elbow Surgeons shoulder assessment form and Simple Shoulder Test in patients with shoulder arthritis
Chelsea E. Minoughan,Adam P. Schumaier,John L. Fritch,Brian M. Grawe
Journal of Shoulder and Elbow Surgery. 2017;
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371 Control of Allergic Rhinitis and Asthma Test for Children (CARATKids)
Rita Amaral,Ana C. Carneiro,Gustavo Wandalsen,João A. Fonseca,Dirceu Sole
Annals of Allergy, Asthma & Immunology. 2017; 118(5): 551
[Pubmed] | [DOI]
372 Systematic Literature Review and Meta-Analysis of Commercially Available Computerized Cognitive Training Among Older Adults
Amber M. Tetlow,Jerri D. Edwards
Journal of Cognitive Enhancement. 2017;
[Pubmed] | [DOI]
373 Impact of Tocilizumab Monotherapy on Clinical and Patient-Reported Quality-of-Life Outcomes in Patients with Rheumatoid Arthritis
Leslie R. Harrold,Ani John,George W. Reed,Tmirah Haselkorn,Chitra Karki,YouFu Li,Jennie Best,Steve Zlotnick,Joel M. Kremer,Jeffrey D. Greenberg
Rheumatology and Therapy. 2017;
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374 A Systematic Review of Measurement Properties of Patient-Reported Outcome Measures Used in Patients Undergoing Total Knee Arthroplasty
Joel J. Gagnier,Megan Mullins,Hsiaomin Huang,Danica Marinac-Dabic,Anna Ghambaryan,Benjamin Eloff,Faisal Mirza,Manuel Bayona
The Journal of Arthroplasty. 2017;
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375 Patient-Reported Outcomes Can Be Used to Streamline Post-Total Hip Arthroplasty Follow-Up to High-Risk Patients
Jie J. Yao,Hilal Maradit Kremers,Cathy D. Schleck,Dirk R. Larson,Jasvinder A. Singh,Daniel J. Berry,David G. Lewallen
The Journal of Arthroplasty. 2017;
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376 Comparison of pediatric self reports and parent proxy reports utilizing PROMIS: Results from a chiropractic practice-based research network
Joel Alcantara,Jeanne Ohm,Junjoe Alcantara
Complementary Therapies in Clinical Practice. 2017;
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377 Management of aromatase inhibitor induced musculoskeletal symptoms in postmenopausal early Breast cancer: A systematic review and meta-analysis
Kate Roberts,Kirsty Rickett,Ristan Greer,Natasha Woodward
Critical Reviews in Oncology/Hematology. 2017; 111: 66
[Pubmed] | [DOI]
378 Impact of targeted therapies in metastatic renal cell carcinoma on patient-reported outcomes: Methodology of clinical trials and clinical benefit
M. Dos Santos,P.E. Brachet,C. Chevreau,F. Joly
Cancer Treatment Reviews. 2017; 53: 53
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379 A prospective study to validate the Polish language version of the European Organisation for Research and Treatment of Cancer (EORTC) Colorectal Liver Metastases (QLQ-LMC21) module
Dominika Paradowska,Krzysztof Bereza,Beatrice Sanna,Ewa Kucharska,Iwona M. Tomaszewska,Zbigniew Dudkiewicz,Piotr Skotnicki,Andrew Bottomley,Krzysztof A. Tomaszewski
European Journal of Oncology Nursing. 2017;
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380 Impact of rituximab on patient-reported outcomes in patients with rheumatoid arthritis from the US Corrona Registry
Leslie R. Harrold,Ani John,Jennie Best,Steve Zlotnick,Chitra Karki,YouFu Li,Jeffrey D. Greenberg,Joel M. Kremer
Clinical Rheumatology. 2017;
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381 Measuring quality of life in opioid-dependent people: a systematic review of assessment instruments
Lisa Strada,Wouter Vanderplasschen,Angela Buchholz,Bernd Schulte,Ashley E. Muller,Uwe Verthein,Jens Reimer
Quality of Life Research. 2017;
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382 Scoping review of response shift methods: current reporting practices and recommendations
Tolulope T. Sajobi,Ronak Brahmbatt,Lisa M. Lix,Bruno D. Zumbo,Richard Sawatzky
Quality of Life Research. 2017;
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383 Utility of a patient-reported outcome in measuring functional impairment during autologous stem cell transplant in patients with multiple myeloma
Nina Shah,Qiuling Shi,Sergio Giralt,Loretta Williams,Qaiser Bashir,Muzaffar Qazilbash,Richard E. Champlin,Charles S. Cleeland,Xin Shelley Wang
Quality of Life Research. 2017;
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384 Evidence-based prevention and treatment of osteoporosis after spinal cord injury: a systematic review
Saeed Soleyman-Jahi,Ali Yousefian,Radin Maheronnaghsh,Farhad Shokraneh,Shayan Abdollah Zadegan,Akbar Soltani,Seyed Mostafa Hosseini,Alexander R. Vaccaro,Vafa Rahimi-Movaghar
European Spine Journal. 2017;
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385 Predictors of Health-Related Quality of Life in boys with Duchenne muscular dystrophy from six European countries
Christiane Otto,Birgit F. Steffensen,Ann-Lisbeth Højberg,Claus Barkmann,Jes Rahbek,Ulrike Ravens-Sieberer,Annette Mahoney,Julia Vry,Kathrin Gramsch,Rachel Thompson,Sunil Rodger,Kate Bushby,Hanns Lochmüller,Janbernd Kirschner
Journal of Neurology. 2017;
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386 Feasibility and Psychometric Properties of the Adjusted DSWAL-QoL Questionnaire for Dysphagic Patients with Additional Language and/or Cognitive Impairment: Part I
Ingeborg S. Simpelaere,Jan Vanderwegen,Kristien Wouters,Marc De Bodt,Gwen Van Nuffelen
Dysphagia. 2017;
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387 Cross-Cultural Adaptation and Validation of the SWAL-QoL Questionnaire in Greek
Voula C. Georgopoulos,Myrto Perdikogianni,Myrto Mouskenteri,Loukia Psychogiou,Maria Oikonomou,Georgia A. Malandraki
Dysphagia. 2017;
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388 Important clinical descriptors to include in the examination and assessment of patients with femoroacetabular impingement syndrome: an international and multi-disciplinary Delphi survey
M. P. Reiman,K. Thorborg,K. Covington,C. E. Cook,P. Hölmich
Knee Surgery, Sports Traumatology, Arthroscopy. 2017;
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389 Quality of Surgery in Malawi: Comparison of Patient-Reported Outcomes After Hernia Surgery Between District and Central Hospitals
Jakub Gajewski,Ronan Conroy,Leon Bijlmakers,Gerald Mwapasa,Tracey McCauley,Eric Borgstein,Ruairi Brugha
World Journal of Surgery. 2017;
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390 Qualitätsentwicklung in der interdisziplinären Trans-Gesundheitsversorgung
Timo O. Nieder,Andreas Köhler,Jana Eyssel,Peer Briken
Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz. 2017;
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391 Translation and validation of the 15-item Myasthenia Gravis Quality of life scale in Dutch
Ellen Strijbos,Fania R. Gärtner,Jan J. Verschuuren
Muscle & Nerve. 2017;
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392 Association Among Facial Paralysis, Depression, and Quality of Life in Facial Plastic Surgery Patients
Jason C. Nellis,Masaru Ishii,Patrick J. Byrne,Kofi D. O. Boahene,Jacob K. Dey,Lisa E. Ishii
JAMA Facial Plastic Surgery. 2017; 19(3): 190
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393 The prevalence and impact of chronic neuropathic pain on daily and social life: A nationwide study in a Japanese population
S. Inoue,T. Taguchi,T. Yamashita,M. Nakamura,T. Ushida
European Journal of Pain. 2017;
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394 Mandibular complete denture versus single-implant overdenture: a systematic review of patient-reported outcomes
T. E. Nogueira,D. R. Dias,C. R. Leles
Journal of Oral Rehabilitation. 2017;
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395 Linking Spending and Quality Indicators to Measure Value and Efficiency in Health Care
Andrew M. Ryan,Christopher P. Tompkins,Adam A. Markovitz,Helen R. Burstin
Medical Care Research and Review. 2017; 74(4): 452
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396 Performance of PROMIS Instruments in Patients With Shoulder Instability
Chris A. Anthony,Natalie A. Glass,Kyle Hancock,Matt Bollier,Brian R. Wolf,Carolyn M. Hettrich
The American Journal of Sports Medicine. 2017; 45(2): 449
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397 Quality of life patient-reported outcomes for locally advanced cutaneous melanoma
Evan S. Weitman,Matthew Perez,John F. Thompson,Robert H. I. Andtbacka,Jo Dalton,Mona L. Martin,Talia Miller,Chad Gwaltney,David Sarson,Eric Wachter,Jonathan S. Zager
Melanoma Research. 2017; : 1
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398 Persistent hypothyroid symptoms in a patient with a normal thyroid stimulating hormone level
Jacqueline Jonklaas
Current Opinion in Endocrinology & Diabetes and Obesity. 2017; 24(5): 356
[Pubmed] | [DOI]
399 Patient-reported outcome measures and qualitative research in dermatology: the quest for authenticity
C.J. Apfelbacher,P.A. Nelson
British Journal of Dermatology. 2017; 176(2): 285
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400 Physical after-effects in men undergoing prostate biopsy in routine clinical practice: Results from the PiCTure study
Eileen Morgan,Frances J. Drummond,Catherine Coyle,Linda Sharp,Anna T. Gavin
Urologic Oncology: Seminars and Original Investigations. 2017;
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401 Social correlates of health status, quality of life, and mood states in patients treated with cannabidiol for epilepsy
Magdalena Szaflarski,Barbara Hansen,E. Martina Bebin,Jerzy P. Szaflarski
Epilepsy & Behavior. 2017;
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402 Chemotherapy completion in elderly women with ovarian, primary peritoneal or fallopian tube cancer – An NRG oncology/Gynecologic Oncology Group study
Vivian E. von Gruenigen,Helen Q. Huang,Jan H. Beumer,Heather A. Lankes,William Tew,Thomas Herzog,Arti Hurria,Robert S. Mannel,Tina Rizack,Lisa M. Landrum,Peter G. Rose,Ritu Salani,William H. Bradley,Thomas J. Rutherford,Robert V. Higgins,Angeles Alvarez Secord,Gini Fleming
Gynecologic Oncology. 2017;
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403 Noninvasive positive pressure ventilation in the immediate post–bariatric surgery care of patients with obstructive sleep apnea: a systematic review
Solomon Tong,Jonathan Gower,Austin Morgan,Kyle Gadbois,Gordon Wisbach
Surgery for Obesity and Related Diseases. 2017;
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404 Impact of daclizumab versus interferon beta-1a on patient-reported outcomes in relapsing-remitting multiple sclerosis
Ying Liu,Timothy Vollmer,Eva Havrdova,Katherine Riester,Andrew Lee,Glenn Phillips,Ping Wang,Guido Sabatella
Multiple Sclerosis and Related Disorders. 2017; 11: 18
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405 Predicting Falls Among Patients With Multiple Sclerosis: Comparison of Patient-Reported Outcomes and Performance-Based Measures of Lower Extremity Functions
Shirin Tajali,Mohammad-Jafar Shaterzadeh-Yazdi,Hossein Negahban,Jaap H. van Dieën,Mohammad Mehravar,Nastaran Majdinasab,Amal Saki-Malehis,Razie Mofateh
Multiple Sclerosis and Related Disorders. 2017;
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406 Development and psychometric evaluation of the self-assessment of psoriasis symptoms (SAPS) – clinical trial and the SAPS – real world patient-reported outcomes
April W. Armstrong,Benjamin Banderas,Catherine Foley,Jonathan Stokes,Murali Sundaram,Alan L. Shields
Journal of Dermatological Treatment. 2017; : 1
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407 Recruiting 9126 Primary Care Patients by Telephone: Characteristics of Participants Reached on Landlines, Basic Cell Phones, and Smartphones
Mirsada Serdarevic,Tera L. Fazzino,Charles D. MacLean,Gail L. Rose,John E. Helzer
Population Health Management. 2016; 19(3): 212
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408 Patient-reported long-term outcome after primary hypospadias repair
Ann Nozohoor Ekmark,Einar Arnbjörnsson,Henry Svensson,Emma Hansson
Journal of Plastic Surgery and Hand Surgery. 2016; : 1
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409 Reliability of the revised scoliosis research society22 and oswestry disability index (ODI) questionnaires in adult spinal deformity when administered by telephone
Steven L. Bokshan,Jakub Godzik,Jonathan Dalton,Jennifer Jaffe,Lawrence G. Lenke,Michael P. Kelly
The Spine Journal. 2016;
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410 Improvements in Patient Reported Sexual Function after Microsurgical Varicocelectomy
Bobby B. Najari,Leonard Introna,Darius A. Paduch
Urology. 2016;
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411 Patient perceptions of physician-documented quality care in epilepsy
Lidia M.V.R. Moura,Thiago S. Carneiro,Emily L. Thorn,Michael P. Seitz,John Hsu,Andrew J. Cole,Barbara G. Vickrey,Daniel B. Hoch
Epilepsy & Behavior. 2016; 62: 90
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412 Subjective outcome of 166 tension-free vaginal tape procedures performed by a single surgeon: the Braemar experience
Jose D. Roman
Australian and New Zealand Journal of Obstetrics and Gynaecology. 2016;
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413 Implementing a patient-initiated review system for people with rheumatoid arthritis: a prospective, comparative service evaluation
Victoria A. Goodwin,Priyamvada Paudyal,Mark G. Perry,Nikki Day,Annie Hawton,Christian Gericke,Obioha C. Ukoumunne,Richard Byng
Journal of Evaluation in Clinical Practice. 2016; : n/a
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414 Patient-reported and proxy-reported outcome measures for the assessment of health-related quality of life among patients receiving enteral feeding
Ingeborg Simpelaere,Anne White,Geertruida E. Bekkering,Bart Geurden,Gwen Van Nuffelen,Marc De Bodt
JBI Database of Systematic Reviews and Implementation Reports. 2016; 14(7): 45
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415 The changing landscape of papillary thyroid cancer: Epidemiology, management, and the implications for patients
Carrie C. Lubitz,Julie A. Sosa
Cancer. 2016;
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416 Including the Patient Voice in Aesthetic Rhinoplasty Outcomes
Lisa E. Ishii
JAMA Facial Plastic Surgery. 2016; 18(1): 35
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417 Cross-cultural adaptation and multi-centric validation of the Italian version of the Achilles tendon Total Rupture Score (ATRS)
Alberto Vascellari,Pietro Spennacchio,Alberto Combi,Alberto Grassi,Silvio Patella,Salvatore Bisicchia,Gian Luigi Canata,Stefano Zaffagnini
Knee Surgery, Sports Traumatology, Arthroscopy. 2016;
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418 Quantifying clinical change: discrepancies between patients’ and providers’ perspectives
Rachel P. Dreyer,Philip G. Jones,Shelby Kutty,John A. Spertus
Quality of Life Research. 2016;
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419 The utility of patient-reported outcome measures among patients with myalgic encephalomyelitis/chronic fatigue syndrome
Kyle W. Murdock,Xin Shelley Wang,Qiuling Shi,Charles S. Cleeland,Christopher P. Fagundes,Suzanne D. Vernon
Quality of Life Research. 2016;
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420 Efficacy of menopausal hormone therapy on sleep quality: systematic review and meta-analysis
Dahima Cintron,Melissa Lipford,Laura Larrea-Mantilla,Gabriela Spencer-Bonilla,Robin Lloyd,Michael R. Gionfriddo,Shalak Gunjal,Ann M. Farrell,Virginia M. Miller,Mohammad Hassan Murad
Endocrine. 2016;
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421 Readability and Comprehension of the Geriatric Depression Scale and PROMIS® Physical Function Items in Older African Americans and Latinos
Sylvia H. Paz,Loretta Jones,José L. Calderón,Ron D. Hays
The Patient - Patient-Centered Outcomes Research. 2016;
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422 Engaging stakeholders into an electronic patient-reported outcome development study: On making an HIV-specific e-PRO patient-centered
Kim Engler,David Lessard,Isabelle Toupin,Andràs Lènàrt,Bertrand Lebouché
Health Policy and Technology. 2016;
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423 Illness perception in patients with androgenetic alopecia and alopecia areata in China
Nan-Lan Yu,Huan Tan,Zhi-Qiang Song,Xi-Chuan Yang
Journal of Psychosomatic Research. 2016; 86: 1
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424 Predictors of Dysgeusia in Patients With Oropharyngeal Cancer Treated With Chemotherapy and Intensity Modulated Radiation Therapy
Eli Sapir,Yebin Tao,Felix Feng,Stuart Samuels,Issam El Naqa,Carol A. Murdoch-Kinch,Mary Feng,Matthew Schipper,Avraham Eisbruch
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425 Using Quality Improvement Principles to Enhance Long-Term Completion of Patient-Reported Outcomes after Ventral Hernia Repair
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Journal of the American College of Surgeons. 2016;
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426 Feasibility of the collection of patient-reported outcomes in an ambulatory neurology clinic
Lidia M.V.R. Moura, Eli Schwamm, Valdery Moura Junior, Michael P. Seitz, John Hsu, Andrew J. Cole, Lee H. Schwamm
Neurology. 2016; 87(23): 2435
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427 Perception of parents and caregivers regarding the impact of malocclusion on adolescents’ quality of life: a cross-sectional study
Lucas Guimarães Abreu,Camilo Aquino Melgaço,Mauro Henrique Abreu,Elizabeth Maria Bastos Lages,Saul Martins Paiva
Dental Press Journal of Orthodontics. 2016; 21(6): 74
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428 How to Evaluate Health-Related Quality of Life and Its Association with Medication Adherence in Pulmonary Tuberculosis – Designing a Prospective Observational Study in South Africa
Tanja Kastien-Hilka,Bernd Rosenkranz,Bryan Bennett,Edina Sinanovic,Matthias Schwenkglenks
Frontiers in Pharmacology. 2016; 7
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429 Relevance of Patient-Reported Outcomes for the Management of Patients with Inflammatory Bowel Disease
Morgan McKenzie
EMJ Gastroenterology. 2016; : 43
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430 Prospective evaluation of pain, swelling, and disability from copperhead envenomation
Brett Roth,Kapil Sharma,Nancy Onisko,Tiffany Chen
Clinical Toxicology. 2016; : 1
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431 Measurement of Depression in Breast Cancer Patients by Using a Mobile Application : A Feasibility and Reliability Study
Yoojin Sim,Guiyun Sohn,Byung Ho Son,Sei Hyun Ahn,Jong Won Lee,Yong-Wook Shin
Journal of Korean Neuropsychiatric Association. 2016; 55(3): 234
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432 Mapping the EQ-5D-5L Utility Scores: A Pilot Study in Orthopaedic Patients
Man Hung,Christine Cheng,Shirley D. Hon,Jerry Bounsanga
Open Journal of Orthopedics. 2015; 05(04): 67
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433 Interleukin-6 and Tumor Necrosis Factor-a Are Associated with Quality of Life–Related Symptoms in Pulmonary Arterial Hypertension
Lea Ann Matura,Corey E. Ventetuolo,Harold I. Palevsky,David J. Lederer,Evelyn M. Horn,Stephen C. Mathai,Diane Pinder,Christine Archer-Chicko,Emilia Bagiella,Kari E. Roberts,Russell P. Tracy,Paul M. Hassoun,Reda E. Girgis,Steven M. Kawut
Annals of the American Thoracic Society. 2015; 12(3): 370
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434 Patient-Reported Outcomes and Total Health Care Expenditure in Prediction of Patient Satisfaction: Results From a National Study
Man Hung,Weiping Zhang,Wei Chen,Jerry Bounsanga,Christine Cheng,Jeremy D Franklin,Anthony B Crum,Maren W Voss,Shirley D Hon
JMIR Public Health and Surveillance. 2015; 1(2): e13
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435 Prospective study of recovery from copperhead snake envenomation: an observational study
Eric J Lavonas,Charles J Gerardo
BMC Emergency Medicine. 2015; 15(1)
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436 Development and validation of a patient-reported outcome measure for stroke patients
Yanhong Luo,Jie Yang,Yanbo Zhang
Health and Quality of Life Outcomes. 2015; 13(1)
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437 Patient reported outcome measures for visual impairment after stroke: a systematic review
Lauren R. Hepworth,Fiona J. Rowe,Robert Harper,Kathryn Jarvis,Tracey Shipman,Helen Rodgers
Health and Quality of Life Outcomes. 2015; 13(1)
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438 Baclofen for alcohol dependence: Relationships between baclofen and alcohol dosing and the occurrence of major sedation
Benjamin Rolland,Julien Labreuche,Alain Duhamel,Sylvie Deheul,Sophie Gautier,Marine Auffret,Baptiste Pignon,Thomas Valin,Régis Bordet,Olivier Cottencin
European Neuropsychopharmacology. 2015; 25(10): 1631
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439 Effects of inhaled ginger aromatherapy on chemotherapy-induced nausea and vomiting and health-related quality of life in women with breast cancer
Pei Lin Lua,Noor Salihah,Nik Mazlan
Complementary Therapies in Medicine. 2015; 23(3): 396
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440 High correlation of the Oxford Knee Score with postoperative pain, but not with performance-based functioning
Ruud P. van Hove,Richard M. Brohet,Barend J. van Royen,Peter A. Nolte
Knee Surgery, Sports Traumatology, Arthroscopy. 2015;
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441 Potential Benefits of Acupuncture for Enhanced Recovery in Gynaecological Surgery
Jeong-Eun Yoo, Dal-Seok Oh
Complementary Medicine Research. 2015; 22(2): 111
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442 Health-related quality of life in morphoea
N.K. Klimas,A.D. Shedd,I.H. Bernstein,H. Jacobe
British Journal of Dermatology. 2015; 172(5): 1329
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443 Development and validation of patient-reported outcomes scale for hypertension
Li Zhi,Liu Qiaojun,Zhang Yanbo
International Journal for Quality in Health Care. 2015; 27(5): 369
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444 Patient-reported outcome measures for hip preservation surgery--a systematic review of the literature
N. Ramisetty,Y. Kwon,N. Mohtadi
Journal of Hip Preservation Surgery. 2015; 2(1): 15
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445 Diagnosis, Bedside Manner and Comment Style are Predictive Factors in Online Ratings of Urologists
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446 A Daily Process Analysis of Physical Activity, Sedentary Behavior, and Perceived Cognitive Abilities
Patrick T. Fitzsimmons,Jaclyn P. Maher,Shawna E. Doerksen,Steriani Elavsk,Amanda L. Rebar,David E. Conroy
Psychology of Sport and Exercise. 2014;
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447 Time for a Paradigm Shift With Computerized Adaptive Testing of General Physical Function Outcomes Measurements
Man Hung,Jeremy D. Franklin,Shirley D. Hon,Christine Cheng,Jillian Conrad,Charles L. Saltzman
Foot & Ankle International. 2014; 35(1): 1
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448 Psychometric Comparison of the PROMIS Physical Function CAT With the FAAM and FFI for Measuring Patient-Reported Outcomes
Man Hung,Judith F. Baumhauer,James W. Brodsky,Christine Cheng,Scott J. Ellis,Jeremy D. Franklin,Shirley D. Hon,Susan N. Ishikawa,L. Daniel Latt,Phinit Phisitkul,Charles L. Saltzman,Nelson F. SooHoo,Kenneth J. Hunt
Foot & Ankle International. 2014; 35(6): 592
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449 Comparative Outcomes of Minimally Invasive Surgery for Posterior Lumbar Fusion: A Systematic Review
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Clinical Orthopaedics and Related Research®. 2014;
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450 Creating meaningful cut-scores for Neuro-QOL measures of fatigue, physical functioning, and sleep disturbance using standard setting with patients and providers
Karon F. Cook,David E. Victorson,David Cella,Benjamin D. Schalet,Deborah Miller
Quality of Life Research. 2014;
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451 Safety and tolerability of slow-release oral morphine versus methadone in the treatment of opioid dependence
Robert Hämmig,Wilfried Köhler,Karin Bonorden-Kleij,Bernd Weber,Karin Lebentrau,Toni Berthel,Lucija Babic-Hohnjec,Christian Vollmert,Doris Höpner,Najibulah Gholami,Uwe Verthein,Christian Haasen,Jens Reimer,Christian Ruckes
Journal of Substance Abuse Treatment. 2014; 47(4): 275
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452 Feasibility of Using the Patient-Reported Outcomes Measurement Information System in Academic Health Centers: Case Series Design on Pain Reduction After Chiropractic Care
Jeanmarie R. Burke
Journal of Chiropractic Medicine. 2014; 13(3): 168
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453 Electronic Versus Paper-Based Assessment of Health-Related Quality of Life Specific to HIV Disease: Reliability Study of the PROQOL-HIV Questionnaire
Martin Duracinsky,Christophe Lalanne,Cécile Goujard,Susan Herrmann,Christian Cheung-Lung,Jean-Paul Brosseau,Yannick Schwartz,Olivier Chassany
Journal of Medical Internet Research. 2014; 16(4): e115
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454 Regulatory considerations for prospective patient care registries: lessons learned from the National Neurosurgery Quality and Outcomes Database*
Anthony L. Asher,Matthew J. McGirt,Steven D. Glassman,Rachel Groman,Dan K. Resnick,Melissa Mehrlich,Elizabeth Spivey,Paul McCormick
Neurosurgical Focus. 2013; 34(1): E5
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455 Power and Sample Size Determination for the Group Comparison of Patient-Reported Outcomes with Rasch Family Models
Myriam Blanchin,Jean-Benoit Hardouin,Francis Guillemin,Bruno Falissard,Véronique Sébille,Mauro Gasparini
PLoS ONE. 2013; 8(2): e57279
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456 Quality of life and living arrangements for people with intellectual disability
Marco Bertelli,Luis Salvador-Carulla,Stefano Lassi,Michele Zappella,Raymond Ceccotto,David Palterer,Johan de Groef,Laura Benni,Paolo Rossi Prodi
Advances in Mental Health and Intellectual Disabilities. 2013; 7(4): 220
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  In this article
    Abstract
   Introduction
   Importance of PRO
    PRO and Other Ty...
    Difference Betwe...
   Important Concepts
    Ideal Properties...
    Significance of ...
    Types of PRO Ins...
    Development of P...
    Administration o...
   Response Scales
   Evaluation of PRO
   Electronic PRO
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